The small picture

4 minute read time.

Sometimes, as the actress has no doubt said to the Bishop many times, it's the little things that matter. When it comes to the big stuff - oh, let us say, for the sake of argument, sitting down one day in a clinic and being told that there is a crab eating away at your insides - then it's easy: your immediate reaction is oh, is there, then? We'll see about that, Crabby, my lad! And, in fact, the big things - hospitalisation, surgery and so on - are pretty easy to deal with, if only because (a) all the important stuff is in other people's far better-trained hands and (b) one is mercifully unconscious for a lot of it.

But then there is the small stuff: you know, the stuff you're not supposed to sweat. And it is small stuff, minor, petty, insignificant; not worth acknowledging, even, let alone bitching about it. Except ... it goes on and on, day after day, and it builds up, and there's no end in sight, and ... you get so tired. That's my only explanation, and my only excuse. 

'Tired' is a big part of it, in my case; because of the problem I had with my lung, and now because of the chemo, I'm exhausted almost all the time. I can't do stuff, and I want to do stuff - even being able to focus on a book or watch a DVD would be something. I can't keep up with my friends online, and I can't go out without paying the cost for hours, even days, thereafter. Tesco might as well change its name to Annapurna.

I have a long way to go, even so, before it becomes a real problem: I can feed myself, get to the loo, keep myself clean, take my medication, and I'm clinging to that. But sometimes one gets a bit fed up of being thankful for small mercies.

And then there are the chemo side-effects. Hair loss, for one. Well, I said all along that this wouldn't bother me too much and, in fact, it doesn't - although I have discovered through bitter experience that going out without a hat puts one's cancer automatically in the public domain ("Yes, I'm doing fine, thank you ... oh, really, your sister-in-law, I'm sorry ... who are you again?") - but I'll tell you that, even though I don't think personal vanity is one of my worst failings, losing my hair would trouble me even less if I were to look more like a Pre-Raphaelite with a Romantic Wasting Disease and less like Matt Lucas with ringworm.

Fizzy fingers. They call it 'numbness', but it isn't numbness, they're not dead, they have feeling. It's just not the feeling you expect your finger ends to have. It's weird. It's unpleasant. It's constant and inescapable. And it plays absolute buggery with your typing!

Loss of taste - "You never had much in the first place, Hils," I hear you cry, and I ignore this vagary as beneath contempt. First of all, let me acknowledge that I am fully conscious of my first-world privilege in that I expect food to be readily available, and to be diverse and enjoyable. I'm not in a saintly mood at the moment. I'm in the mood that, truthfully, just about anyone would be in if everything they'd eaten for weeks tasted like garbage and stayed in their mouth, still tasting like garbage, for hours after every meal. It's got to the point where the high point of my day is gargling with Listerine - and even that doesn't last.

(There is actually a temporary fix to this that I discovered quite by accident: mint-flavoured toffees. My brother brought me some left-over Hallowe'en sweeties ["Reverse trick or treat!" he said], that's how I found that out. Toffee isn't usually part of my gastronomic landscape.)

It's a similar sensation to the one that's mentioned in a lot of vampire mythologies, where human food is dust and ashes to them. Being reminded, as I am, of Mick St John in Moonlight, on briefly becoming human, promptly heading out and gorging himself on junk food, isn't much of a consolation, but I know just how he felt.

And let us come, at last, to the pain. For several days now, I've had to break radio silence just to bitch about Mr Crab being exceptionally bitey. Personally, I suspect that this is his reaction to the fact that we're trying to KILL HIM, which is only tit for tat, after all, he'd do the same to me. But it's hard to tell what's Mr Crab, and what is only, let us say delicately, 'stomach cramps': they both bloody well hurt. How do you know when it's hurting as much as you can stand? And how would you cope if you turned out to be the girl who called 999 just because she needed a poo?

What a dilemma it all is. Luckily, I've just about run out of steam for this post. I expect there will be more in a day or so.

Other points to ponder: all of this might have been a bit more bearable if there had been, you know, daylight at all this week. It's so bloody No-vemberish that I can't even.

And it's also possible, stupid as it may sound, that I'm suffering from post-chemo depression. For three weeks, everything builds up to chemo: then, six hours, and it's over, and you're left with another three weeks of ...

... well, of nothing, really. Or of very little.

Which is where we came in.




Anonymous
  • Hi Hilary how right you are about the big stuff I could deal with my diagnosis and the husband leaving me  but  I found the small stuff we are not supposed to sweat the more difficult. those things that bring light and enjoyment into our lives when we are feeling down like reading a book or taking a walk enjoying a meal the disease robs us of and I guess if we knew that this is only today and tomorrow or next week it will all be ok we would be able to bear it but when it is day after day after day it is like trudging through mud and getting nowhere and this is so exhausting both physically and mentally.I was fortunate that I did not have to have chemo like 2 of my dear friends and my sister in law I can not imagine how I would have coped if I had.I couldn't eat for about 11 days after my op my friend told me to try pineapple and this did help. Stinker is right this is hibernation weather.I hope for better days for you.

    much love and hugs

    Chrisxxxxxx

     

  • FormerMember
    FormerMember

    Hi Darling... doing one of your too tired to post a lot things but will say more tomorrow. Tonight I just want to say I know just what you mean... and you saw me moan about a little thing in The Room. Big stuff, no problem, can't be a dolphin, tears aplenty. ...

    Big hug to you for having to put up with all the little stuff and if you have enough energy, I wrote a blog that might make you snigger a bit... don't need to  waste energy in a reply but may help put a smile on your face (I hope cos its too long if it doesn't)

    take care and lots of love to you

    Little My xxx

  • FormerMember
    FormerMember

    Hi Hils,

    Sending you lots of positive vibes and love and hugs ((((((((hug)))))))))) xxxxxxxxxxx  Biggest best wishes for better days to come for you.

    Take care

    Jan xxxxxxxxxx

  • FormerMember
    FormerMember

    Thank you, everyone, and lots of *hugs* back all round. (And Odin - and anyone else - you are always welcome to add your whinges to mine. Saves spoiling two others, as we said when we saw what my brother was proposing to marry.) (My other brother, not Tim.)

    You know, I swear half my problem is just that I'm bored. However, sticking to my 'careful what you wish for' principles, may I just state categorically that I do not wish things to become exciting, unless it's in the nicest and most positive sense of the word!

    And pineapple sounds nice. I should give that a shot. I was thinking earlier that there would never be a better time than this to try surströmming - LM, with her Viking roots, will know all about surströmming, although what she knows may be along the lines of "These Norwegians are crazy" - but, on reflection, I think there may be no good time to try that.

    Have been for an Expotition to try and get my legs uncramped - Homebase, the pet store, the Co-op. Woop, live it up! Not sure it was successful - leg cramp may be down to low red cell count rather than lack of exercise, and I am now distinctly short on spoons ...

    xxx 

  • FormerMember
    FormerMember

    Hi Hils,

    These gloomy November days certainly don't help do they, though at last today the sun has finally shown itself here in Bristol. It's amazing how a bit of sun on my face makes me feel so much better.

    Sorry about all the shitty stuff you are having to put up with, I hope the days ahead are much better for you. Well done on your exciting visit to the shops, but sorry for the loss of spoons.

    Bestest wishes and big hugs.

    TIght Lines

    Tim xxx