In which they are out for my blood

6 minute read time.

Actually, it's the other way round: they are going to give me some. But I anticipate myself ...

When last seen, we (that's me, as usual) were in a miserable, grumpy sort of mood. There had, in fact, been actual tears - not many, but a few - and this is rare, because we may be a bit daft but we are not, in general, a big wuss. With a view to posterity (hi, posterity!), perhaps I should note: the week directly following chemo does seem to be a bit rotten, incorporating any combination of mopiness, twinges, fizzy fingers, trashcan mouth - other than language-wise, which is SOP and about which nothing can be done - and other things which, with apologies to posterity, I have now forgotten as they were all of a week ago. Oh, yes, chemobrain, but that too is SOP these days and I've stopped worrying about it. After all, how many people would be bothered if they couldn't remember Clement Attlee's name? That's what I thought. Mrs Attlee, perhaps, and exactly nobody else, and I imagine Mrs Attlee is probably dead by this time.

So! We are altogether less mopy now, and so I should jolly well think, given that almost every single person I know, with the notable exception of anyone from my present workplace*, has now been by the house and brought me something, some of them several times. Most of the things they have brought have been cakes, cookies, pie, and other items of that ilk, which may account for the fact that, while other cancer patients fade away to a big-eyed, frail shadow of themselves - like those bloody awful tramp-child artwork posters you used to get in the 70s, because nothing is more romantic than an underage street person - I retain the general outline of a prize-winning pumpkin. With, unfortunately, IQ to match. (Note: this does not mean that cookies, etc, are by any means unwelcome, far from it.) Lynn gets a special mention for coming for several days - several days during the course of which she barely saw me at all, because I couldn't get out of bed for most of them - and for repainting the downstairs loo (Judy dropped the mirror when she was putting it back, and broke it. Hah. Seven years' bad luck? BRING IT THE FUCK ON!) (the new mirror is fish-shaped, to go with the somewhat piscine theme of the downstairs loo ... hey, I just thought, I could change its name from the current, rather boring 'the Blue Boudoir' to 'the Piscine Chapel', though it still has nothing on the Comedy Bathroom upstairs. Anyway, it was a very cheap mirror and had a bit of a scratch on it, so Judy's stuck a dolphin sticker over the scratch. You know, as you do.) Tina gets a special mention, too, for bringing me a stick. It would've been an orchid, but the flowers fell off. It made me laugh, anyway, hence the 'special'. Father Christmas, in the far more attractive shape of my lovely sister-in-law Michelle, sent me a silver Troll bracelet, so now I have the excitement of looking for beads I can afford. And then there were the lemon cupcakes which Judy sekritly conspired with someone at Fat Club (I know, the irony of it all) to bake ...

I did manage to muster up the energy to bitch about idiotic Facebook memes, especially cancer-consciousness-raising ones that do nothing of the kind, and also about the general butt-ugliness of cancer hats. By pure serendipity, I managed to sort the second problem (nothing will ever sort Facebook idiocy, and you will break your heart trying) - I found an Irish site, BlueRoseWaterford.com, which makes exactly the hats I had been looking for. This has been a public service announcement, and you are most welcome.

In real, ie cancer terms, last week was very quiet, all I had to do was go and get pre-clinic bloods taken. This week ... this week should've been quiet too, but it looks as if it might get interesting. Clinic was this morning; the Churchill was on its usual super-efficient form, with an hour's wait, but it's getting so we expect that and think ourselves lucky if we're seen the same day. It did seem a little alarming that almost nobody was getting called in, and more worrying yet that the few people called in by the senior consultant never seemed to come out again - we thought perhaps he was harvesting their organs - but we did get seen eventually, and by Dr Nicum herself, no less. Dr Nicum has her name on the hospital writing paper, so clearly we are impressed. We ran through the standard 'how I felt after chemo' routine (see above), she scribbled things down, looked at her notes, and then said "How would you feel about a blood transfusion?"

Puzzled, is actually the answer, since she asked it kind of out of the blue and it took me a moment to realise she was suggesting I should have one, but it may be a good idea given that my red cell count is quite low, at least according to the chemo nurse. It might help with the tiredness. It might even help with the breathing problem, which would be nice - for Judy as much as for me, she must be awfully tired of the gasping noises I make from time to time. For that matter, it'd be nice to be able to walk to the corner shop without having to stop a good half-dozen times both there and back. It's a five-minute walk, this is silly!

So, first, and with no apparent sense of irony, they took yet another blood sample, or at least they did once the phlebotomist came back from lunch (more waiting. Yes). And now, once again, we are waiting, this time to find out when they'll call us in.

That is, I am, and that's where things get complicated: Judy's just gone up to London for a conference and will be away overnight, and she'll also be away on Thursday. I probably could get to the hospital by bus if I had to; back again, too, although I suspect that would be far less amusing. But getting a lift there and back would be favourite, even though it would mean poor Judy being stuck in the Churchill for yet another six-hour stretch. Chemo #4 is next Monday (stand by for mopiness, everyone!), so, really, if they could schedule me for this Wednesday or Friday, that would be ideal. But I don't think they do it as an on-demand service.

And no, they can't do it at the same time as chemo - one drip in each arm. We asked.

Big news of the day is that now I have to stay alive until June: Bruce Springsteen is touring on the back of a new album! I'm not thrilled that it's Hard Rock Calling again, but I can't really gripe lest someone ask if my diamond shoes are too tight.

They are, in fact, but I suppose that's the least of my problems.

 

* Rebecca and Christina, I don't mean you, you're ex-YBP and, as such, A Breed Apart.

Anonymous
  • FormerMember
    FormerMember

    Okay. My bro wasn't really here for that long, but I ran out of spoons after (during, actually, but I pretended I was okay because I like him). He bought me a BIG SPOON, a big Portmeirion spoon in fact; it's actually a spoon rest, how meta is that?

    You can all - probably - relax wrt getting the bus to hospital: we had a phone call from Rosita, the chemo clinic nurse, this morning, to tell me to come in tomorrow. Judy said she wouldn't be able to drive me, and Rosita said she'd arrange transport and someone would phone me. Nobody has phoned me, and Judy's just suggested that perhaps they'll phone when they come to pick me up, which is rather a horrid thought: I won't know when to get ready for, I'll have to leap out of bed early, take a bath, get dressed, and then wait. Frankly, I would prefer the bus. But whatever.

    LM, I was trying to remember Clement Attlee's name because we were talking about cuts to the NHS. It makes perfect sense.

    I suppose silver would be the nail polish colour to go with diamond shoes.

    We can compare blood transfusion experiences tomorrow (probably. Possibly. Maybe). I hope it helps with the breathing, which is a bit of a pain at the moment - figuratively and literally. It makes my back ache, too. The breathing does, I mean, not the transfusion.

    'Eye incontinence' - um, ew??

    Stinker, cancer has a lot to answer for. Making me cry is definitely a slappable offence, though. And I can share transfusion memoirs with you, too!

    There seems to be a lot of cake eating going on round here. I'm not opposed to it, you understand, far from it. I'm just noting the fact.

    Tim, I suppose the garlic thing is why you never see a vampire running an Italian bistro. Or do you? Pretty sure crucifixes wouldn't work on me: to quote Alfie Bass in The Fearless Vampire Killers, "Oy vey, have you got the wrong vampire!"

    Odin, your injections sound every bit as bad as chemo to me. And don't worry about weepiness, the Lord of Valhalla can do anything he damn pleases.

    Ems, the putting-on-weight bench has been expanded and reinforced, there's room enough for all! How are your horrid itchies?

    Cruton, I have another thing to feel guilty about now, as I only gave blood three times. Every time, I fainted, had to be carried (literally) home, and was ill for days after. Eventually I decided that I probably needed my blood myself and gave up. Every time an advert told me to give blood, not excuses, I shuffled embarrassedly.

    Is that everyone? I think that's everyone.

    Je t'embrasse tous mes chéris. You see, I can speak furrin too! Rather badly, but eh.

    xxx

  • FormerMember
    FormerMember

    PPS: I don't know if someone from my office is stalking me on this blog - god, I hope not! - but, having said they were slacking a bit on the supportive front, first I got the HR lady's email, then today I got a second get-well card. Mind you, my former colleagues in America have sent three cards to date, and several of them are cheering me on on Facebook.

    xx

  • FormerMember
    FormerMember

    Bonjour mon.....  

    Oh I just tried that google translate thing that you found me out on to speak French to you... I wanted to say little pupmpkin and it translated it as little pumpkin and I am sure the French say petite or some such... jävla google. 

    And now I forgot... oh yes. Buses. There is nothing wrong with buses per se but chemo and lack of spoons mean no buses. And I thought I was bad!!! Walking twice as far as the co op and changing buses and all that and waiting... Not ok. Ok?

    A spoon holder sounds good. maybe Mr Hefty/Crabby/Lumpy wouldn't nick them so easily if they were in a holder... How thoughtful of your brother. My brother sends me bum puns via text. he is also lovely.

    I didn't say Clement Attlees name didn't make sense, I was just telling you what his name was cos you forgot ha ha.

    I don't think i will have any amusing transfusion stories to swap. I went in, laid on a bed for a few hours. Got cold. Sniggered with the lady opposite. Got head tilts from other visitors, crashed the drip thing on the loo door and went home. Actually, i went for radiotherapy and then home... I hope you have fun stuff happen and it helps you.

    And as you are google queen,

    Du är min favorit häxa och största kramar och skedar till dig. Jag hade en plan i eftermiddag för att ta dig till havet med Ems i en husbil... :)

    Little My xxx

     

  • FormerMember
    FormerMember

    Well, just to cheer you up my dear, I found breathing and backache so much better after a transfusion. After being out today you definitely should not spend too much time outside as air quality is playing havoc with me. Last couple of weeks my chest has been feeling tight, and I've had a bit of the "Oh shit, its coming back" panic attacks, but then I listen to everyone going round with bad coughs etc and have talked myself back into a Corporal Jones frame of mind "Don't panic"

    Oh for heavens sake, just because someone said last week that 70% of UK did not know a foreign word does not mean we have to google stuff! Reckon they must have been to some remote area and asked the cows! There are some people in the UK who need to learn English/Welsh/ Irish/Gaelic! (Think I got away with that....as my lads would say......and have covered everything so I don't upset anybody)

    Mention of cows reminds me of a funny when I went to Chatsworth a couple of weeks ago with the girls. We were walking across a field and my friend was walking with me as I was stopping to catch breath a few times. We were laughing as there were a load of cow pats and we were warning each other where they were.

    When we caught up with the others we were laughing so much (little things/little minds!) and were telling the others about why were laughing. My friend pointed to two trees and said "They were bloody clever too as they crapped themselves then covered it with leaves!"

    Oh, I hear that jewels are the thing on nails these days, or in the words of Paul Simon "She has diamonds on the soles of her shoes"

    Hope all goes well tomorrow...and LM I had to sit for my transfusions. Mind you, you're always lolling about!

    Bon Soir Cherie,

    Bon Chance

    Louise xxxxxxxx

  • FormerMember
    FormerMember

    Thank you, my dear. But wouldn't a camper sink?

    They went to sea in a sieve, they did/In a sieve they went to sea ...

    I am willing to bet that either your 'to' or 'from' language was set wrong. Petite citrouille is what I get.

    xxx