Evening All,
Now you all know that I rarely do doom & gloom but today I am totally hacked off and feel like my chuckle muscle has been to the dentists and had an injection of that numbing stuff.
I shouldn't complain, because so far
1. Brain surgery - doddle, home after 1 day
2. Staple Removal - hardly felt it
3. Radiotherapy - walk in the park apart from the hairloss.
OK the brain swelling part wasn't very pleasant but the steroids soon put that in check.
Went off to see my oncologist and for once she wasn't too late, even had my specialist nurse Kim in the room for the meeting. First thing she said was "you look well" and then laughed about having been on a course where she was told you shouldn't tell a patient that because if they are not well, you make them feel guilty. Pah, I know I look well.....I feel well and I had dressed for the occassion, well lets face it.....its about the only place I get to go out to now LOL
Everything was going great, we spoke about how the last lot went and that she could prescribe something to prevent the constipation this time. Then she checked my bloods............WHAM.........oh dear, my platelets before the first cycle of chemo were 276 around normal but on Wednesday after 5 days of oral chemo and 23 days to recover were 66 ! She was pretty shocked and so was Kim, they don't usually drop that low until a few more cycles. If it drops below 50 I will need a transfusion - YOU WHAT, I donate blood not get given it!!!! So end result, no chemo for Debs. I mean lets face it, I am not a woman who is used to being told no LOL I have to get my blood rechecked next Wednesday and the Wednesday after......then and only if it has improved can I go back and see her to discuss the next round. The dosage of chemo will have be reduced next time too apparently.
I know it all seems pretty trivial in the grand scheme of things......but I really wanted to get the 6 cycles out of the way by Christmas as it will have been a year of treatment then so I can get on and start living the few years I am due tumour free. Everything else with my bloods was fine apart from my potassium was borderline too - at least that can be fixed with a few banana's and a couple bars of decent dark chocolate!
She did agree however to allow me to reduce my steroids from 6mgs to 4mgs a day and then next Friday I can reduce it down to 2mgs - Hubby is over the moon, apparently I have been "tetchy" to say the least, something I refute, not noticed any change myself ;)
We did something utterly disgusting today - we went and got a drive-thru McDonalds, Big Mac, Fries the works - I don't even like Maccy D's but I had to have one today!!!! Then we sat like teenagers and ate it in the car, the car smelt foul after but it was kinda fun! We had both dogs on the backseat as our substitute kids LOL
Anyway back home and tonight I made a pan of chilli beef but with less sauce as we had it with tortilla wraps, grated cheese and cherry toms.......basically mexican but wraps make for less mess than taco's (top tip LOL).
I have eaten a banana whilst typing this thus already boosting my ailing potassium level, I can be good see!!!!!!!!!!!
Tomorrow the dogs are going for their boosters and it will be a better day. I am sure I will be back to my full annoying self so watch out!!!!!!! You have been warned.
Thought for today:
In three words I can sum up everything I've learned about life: It goes on.
Robert Frost
