Cancer isn't fair, but your boss has to be

2 minute read time.

Each year almost 120,000 people of working age are diagnosed with cancer in the UK. In 2012 I was one of those 120,000. 

I’d been in a new job for six months when I was diagnosed with cancer. On top of coming to terms with the diagnosis, learning about treatment options and side effects, and breaking the news to family and friends, I was also worried about what would happen to me at work and how my employer would respond to the news of my diagnosis. 

I was lucky. My employer was really supportive and encouraged me to take the time I needed for treatment and recovery. Some of my work colleagues kept in touch by text and email and the HR team emailed me regularly to check how I was. I was really grateful for the support: it helped me cope with treatment and rebuild my health and fitness after treatment. 

Work and cancer 

Not everyone gets that sort of support. Almost half of people living with cancer who were in work when they were diagnosed (47%) say their employer didn’t discuss sick pay, flexible working, or making workplace adjustments when they told them of their diagnosis. Almost one in five people who returned to work after their cancer diagnosis (18%) say they’ve experienced a lack of understanding of their needs from their employer or work colleagues. 

And 57% of those of us who are cancer survivors, who were in work when we were diagnosed, have had to give up work or change our roles as a result of the diagnosis. While 60% of us living with cancer, who returned to work after diagnosis, went straight back to our normal working hours. 

Fair treatment 

Many of us don’t know what our employment rights are, or how to make sure we’re being treated fairly at work. A YouGov survey in 2014 found that less than 50% of people diagnosed with cancer knew that cancer is covered by the Equality Act. But Macmillan’s campaign, Cancer isn’t fair but your boss has to be, aims to make sure people affected by cancer know what their rights at work are, and know how to get the support they need. And there isn’t just support for people with cancer. If you’re a carer, a work colleague, or an employer, you can get information. We all need to make sure change happens and people affected by cancer are treated fairly at work. 

Get involved 

If, like me, you want to help Macmillan demand better outcomes for people affected by cancer, you can sign up to be an e-campaigner and keep up-to-date with Macmillan’s campaigns on the campaigns blog

Anonymous
  • FormerMember
    FormerMember

    Hi JayPee

    My experience of Macmillan support and services is similar to yours - I've rarely had a negative experience!

    Do you have a date for your employment tribunal? You say you're feeling physically and mentally exhausted and I imagine the tribunal isn't going to be a breeze. It's great that your union is supporting you, do you have or need support from other people too?

    Good luck with your fight!

  • FormerMember
    FormerMember

    HI Freya,

    My point was more about the fact that is very little practical support for SME's, the Inland Revenue don't care if you have cancer or treatment to have when the VAT is due for example, there's very little or no sick pay and the time it takes to apply and get some money through will be too late for some people.  No-one in our experience at the hospital understands being self-employed and the impact a three hour delay can have to our business and what that delay costs us in real terms.  Then you can also look at the issues of managing people while you're undergoing treatment, it's really hard to keep on top of performance or any other issues that occur while you're classed as ill because some employees can use that as an excuse to either not listen or it's all hormonal. We have to be so careful with making sure that our employees are looked after and treated properly and that is as it should be but maybe something coming back the other way wouldn't go amiss.

  • FormerMember
    FormerMember

    Your legal right for any meetings with work is to take a work colleague in with your or a Union rep...my advice would be a good Union Rep every time.  They know the law, your rights and correct procedure as well as supporting you x

  • FormerMember
    FormerMember

    Hi wendye2002

    Good advice about taking a work colleague or union rep to work meetings. Always good to have support and someone who can make a note of what's discussed and agreed.

  • FormerMember
    FormerMember

    Hi helen2410

    I contacted Macmillan's campaigns team about your query and they told me they've made a note of the issues you've raised as an area of concern and will consider them when planning future campaigns.

    On a practical note and to give you some support: is there anyone who can share some of the work responsibilities with you? Maybe cover the people management or taking on some of the business administration?