Too bad to blog

2 minute read time.

Sorry to everyone to whom I have failed to reply or respond recently. It sounds counter-intuitive, initially, but the side effects continue to get worse after treatment stops - in my case exactly one week ago - and I just have not been able to reply to anyone about anything. The nature of the treatment especially radiotherapy, is such that it continues to roll on inside you even after the input has stopped. Think radiation sickness, Chernobyl, Fukushima .....  

My neighbour, who has been through this, warned me that the two weeks after treatment would be the hardest. He is right but boy, I did not think he was going to be this right. This is the first day I have felt remotely able to write anything, even short. Great that the treatment is done, and in a way I guess I had to focus on getting it done and not think too much about afterwards, but it is dawning on me now that the road will be a lot longer than I thought.

When this whole business started, a breast cancer survivor said to me two things that really stuck with me.

Firstly, she said "This is going to be the hardest fight of your life." Er, yup...

Secondly, she said that the way to envisage the treatment was maybe like climbing a mountain: sometimes it seems hugely steep and just insurmountable, but you just focus on keeping going, step by step, not on the totality of the ascent. So in my mind I said completing each week was like getting to the next camp on the way to the summit - and there was even a little break each weekend to help that feeling that you had arrived at the next camp. But the analogy can be taken further.

After reaching the summit, you have to get back down. (In mountaineering, ascents do not count unless you get back down alive.) And whilst you have achieved the summit, you are exhausted and descending is not that much easier than ascending. It is still cold and the air is still very thin and you do not feel better at all, in fact you feel worse. All you know is that you have to get keep going and get down to an altitude where you can breathe more easily and feel the warmth of the sun. Depending on the weather, you don't know whether this is at camp 4, 3 or even 2 on the way down. You just have to keep going.

Anonymous
  • FormerMember
    FormerMember

    LIFE AFTER RADIOTHERAPY

    This is my first post on here so be gentle!! My husband has finished 23 sessions of radiotherapy treatment for prostrate cancer, during the treatment he took 4 weeks off work but when we went to see the consultant last week she said that he should take at least another 2 weeks off when the treatment finished. From when he was diagnosed (last November) he hasn't coped with this mentally at all. Dark days not so bad days, i have been with him for all the appointments and its hard to keep him positive all the time which im sure im not the only wife/partner to feel this way . He dosent cope well on his home while i am at work so he has decided to go back to work on Monday. I have just read about people saying that they feel awful after the treatment and i am worried that he will feel unwell too. Does anyone think that he should take some more time off work? I understand that everyone is different. I hope that someone can comment on this. Thank you Cath

  • Dear Cath,

    Thanks for your post on my blog. It is very hard to say what is for the best. As you say, every person is different and your husband also has a different cancer from me so that could also make a difference. All I can say is that for me, it would have been utterly impossible to work in the three weeks after treatment. Physically impossible. If your husband has any interests which are not physically demanding, maybe a focus on these could help. I love watching old movies with my wife and even kids sometimes, this helped me. I have also been fixing things around the house - just the easy jobs and very slowly. Lots of rest and some gentle exercise when possible - just a walk around the block. Combined with taking all the medication, it is surprising how much time this can take up.

    But for a really helpful conversation on this I would recommend your husband speak to the specialist nurse assigned to him or to a Macmillan adviser. I think his reaction must be very common and normal and I am sure they will have lots of good advice based on solid experience of how to get through this.

    Very best wishes,

    David

  • FormerMember
    FormerMember

    Hello Cymru123

    Very well done on getting through treatment, it sounds like you've fought hard. I sincerely hope that you're feeling lots better soon and the trek to home across the valley is easier terrain.

    I don't think I've made it to base camp yet. Axe and crampons at the ready, I'm going up!

    Rachel :)