Radiotherapy day 5 for salivary gland cancer

1 minute read time.

Yesterday was the end of the first week. It was quite quick being zapped. I did feel much more tired last night  - but that could just be general lack of sleep rather than anything related to the RT. I did woke up with a slight croak in my throat today but that wore off.

I had an appointment with my GP yesterday to talk about the possibility of getting the Caphopsol. When she looked it up in her book she said she didn't think it was something she could prescribe as it wasn't listed. She said she would contact the pharmacist and see what they said. I asked about private prescriptions or some kind of proof so that I could claim on the insurance and she said she might be able to write me a letter.

She phoned back this afternoon and confirmed that the pharmacist said it wasn't something she could prescribe but she could write me a private prescription, which I whizzed straight down to Tesco. They said they thought they would be able to get it in by Tuesday(because of the bank holiday) but they phoned me today ( less than 24 hours and Saturday) and said 3 boxes of it were in. So I'm up and running. I've taken my first one. 

It's 2 little vials which you mix together and then swill half around your mouth, then swill the other half around and spit it out. Nothing feels magically different but I wasn't expecting it to, so I shall continue and see how it goes.

Today I also received the Cheque from denplan, which was a payment for the 11 nights I spent in hospital. A lovely surprise and very handy as I had the caphopsol to pay for. The letter says that my claim has a pot of £12,000 I can claim against for any treatments related to the mouth cancer. I don't know if this will include future dental work.  I really was expecting there ego be a load more form filling to take place, and it to take ages so I'm very impressed. Hopefully I can now send off the prescription and receipt for the caphopsol and claim that back now. Fingers crossed.

Anonymous
  • FormerMember
    FormerMember

    Hello DLC ... so that's another week down, you are doing great ! Glad that you have the Caphosol so do use it religiously to help your mouth, it may not feel like it's doing much but carry on regardless : )

    The tiredness ... it all starting hitting me at about the half way mark of my RT, then it did become extreme at the end, so don't panic as it is expected ( although some patients may not feel so bad ) the best thing is to listen to your body and sleep / rest if and when you need to ... no point in fighting it and chancing delaying the healing process. Take it day by day and you'll get there x

    Joycee x