In which they are out for my blood

6 minute read time.

Actually, it's the other way round: they are going to give me some. But I anticipate myself ...

When last seen, we (that's me, as usual) were in a miserable, grumpy sort of mood. There had, in fact, been actual tears - not many, but a few - and this is rare, because we may be a bit daft but we are not, in general, a big wuss. With a view to posterity (hi, posterity!), perhaps I should note: the week directly following chemo does seem to be a bit rotten, incorporating any combination of mopiness, twinges, fizzy fingers, trashcan mouth - other than language-wise, which is SOP and about which nothing can be done - and other things which, with apologies to posterity, I have now forgotten as they were all of a week ago. Oh, yes, chemobrain, but that too is SOP these days and I've stopped worrying about it. After all, how many people would be bothered if they couldn't remember Clement Attlee's name? That's what I thought. Mrs Attlee, perhaps, and exactly nobody else, and I imagine Mrs Attlee is probably dead by this time.

So! We are altogether less mopy now, and so I should jolly well think, given that almost every single person I know, with the notable exception of anyone from my present workplace*, has now been by the house and brought me something, some of them several times. Most of the things they have brought have been cakes, cookies, pie, and other items of that ilk, which may account for the fact that, while other cancer patients fade away to a big-eyed, frail shadow of themselves - like those bloody awful tramp-child artwork posters you used to get in the 70s, because nothing is more romantic than an underage street person - I retain the general outline of a prize-winning pumpkin. With, unfortunately, IQ to match. (Note: this does not mean that cookies, etc, are by any means unwelcome, far from it.) Lynn gets a special mention for coming for several days - several days during the course of which she barely saw me at all, because I couldn't get out of bed for most of them - and for repainting the downstairs loo (Judy dropped the mirror when she was putting it back, and broke it. Hah. Seven years' bad luck? BRING IT THE FUCK ON!) (the new mirror is fish-shaped, to go with the somewhat piscine theme of the downstairs loo ... hey, I just thought, I could change its name from the current, rather boring 'the Blue Boudoir' to 'the Piscine Chapel', though it still has nothing on the Comedy Bathroom upstairs. Anyway, it was a very cheap mirror and had a bit of a scratch on it, so Judy's stuck a dolphin sticker over the scratch. You know, as you do.) Tina gets a special mention, too, for bringing me a stick. It would've been an orchid, but the flowers fell off. It made me laugh, anyway, hence the 'special'. Father Christmas, in the far more attractive shape of my lovely sister-in-law Michelle, sent me a silver Troll bracelet, so now I have the excitement of looking for beads I can afford. And then there were the lemon cupcakes which Judy sekritly conspired with someone at Fat Club (I know, the irony of it all) to bake ...

I did manage to muster up the energy to bitch about idiotic Facebook memes, especially cancer-consciousness-raising ones that do nothing of the kind, and also about the general butt-ugliness of cancer hats. By pure serendipity, I managed to sort the second problem (nothing will ever sort Facebook idiocy, and you will break your heart trying) - I found an Irish site, BlueRoseWaterford.com, which makes exactly the hats I had been looking for. This has been a public service announcement, and you are most welcome.

In real, ie cancer terms, last week was very quiet, all I had to do was go and get pre-clinic bloods taken. This week ... this week should've been quiet too, but it looks as if it might get interesting. Clinic was this morning; the Churchill was on its usual super-efficient form, with an hour's wait, but it's getting so we expect that and think ourselves lucky if we're seen the same day. It did seem a little alarming that almost nobody was getting called in, and more worrying yet that the few people called in by the senior consultant never seemed to come out again - we thought perhaps he was harvesting their organs - but we did get seen eventually, and by Dr Nicum herself, no less. Dr Nicum has her name on the hospital writing paper, so clearly we are impressed. We ran through the standard 'how I felt after chemo' routine (see above), she scribbled things down, looked at her notes, and then said "How would you feel about a blood transfusion?"

Puzzled, is actually the answer, since she asked it kind of out of the blue and it took me a moment to realise she was suggesting I should have one, but it may be a good idea given that my red cell count is quite low, at least according to the chemo nurse. It might help with the tiredness. It might even help with the breathing problem, which would be nice - for Judy as much as for me, she must be awfully tired of the gasping noises I make from time to time. For that matter, it'd be nice to be able to walk to the corner shop without having to stop a good half-dozen times both there and back. It's a five-minute walk, this is silly!

So, first, and with no apparent sense of irony, they took yet another blood sample, or at least they did once the phlebotomist came back from lunch (more waiting. Yes). And now, once again, we are waiting, this time to find out when they'll call us in.

That is, I am, and that's where things get complicated: Judy's just gone up to London for a conference and will be away overnight, and she'll also be away on Thursday. I probably could get to the hospital by bus if I had to; back again, too, although I suspect that would be far less amusing. But getting a lift there and back would be favourite, even though it would mean poor Judy being stuck in the Churchill for yet another six-hour stretch. Chemo #4 is next Monday (stand by for mopiness, everyone!), so, really, if they could schedule me for this Wednesday or Friday, that would be ideal. But I don't think they do it as an on-demand service.

And no, they can't do it at the same time as chemo - one drip in each arm. We asked.

Big news of the day is that now I have to stay alive until June: Bruce Springsteen is touring on the back of a new album! I'm not thrilled that it's Hard Rock Calling again, but I can't really gripe lest someone ask if my diamond shoes are too tight.

They are, in fact, but I suppose that's the least of my problems.

 

* Rebecca and Christina, I don't mean you, you're ex-YBP and, as such, A Breed Apart.

Anonymous
  • FormerMember
    FormerMember

    My memory is struggling to remember everything you wrote about, but here goes... Clemment Atlee, I think is called Clement Atlee?

    I had a blood transfusion. I asked the nurse if it meant I could dance and run out of the ward... She said it wasn't that instant. it wasn't. Oh and they had a waiting list too! It not a bad thing to have done. Just lolling around on a bed for a few hours... Oh it does make you cold though. I had fun with the lady oppostie laying bets on whose egg timer would buzz first and then who would get seen first... oh halycon days.... ha ha. I hope it helps the tiredness and gasping etc. I do however find going to the corner shop an overrated activity so perhaps use that spoon for something useful like sharing stones or redcurrants or whatever nonsens it is you do on FB.

    I was the wasting waif and it is a bit scary when you are doing it, so eat cake I say and lots of it. Pumkins are cool... can stick a torch somewhere and do a scary face too? That would be extra cool....

    I wish I could drive you to the hospital. I did think about looking on the map to see where you lived, but I suspect it would be cheaper in petrol to send you the taxi fare. I would if it would help. Do not get the bus please. I will be most cross if you do and will drive you there. So be warned! Do you really want me sat next to you blabbing shite for hours and hours and hours??? Get one of those cake baking friends to take you.

    I have forgotten now what you said....

    Oh yeah, I love the way they ask these things... how do you feel about.... ? Stupid bloody questions. My fave was don't know if we want to talk anal dilators... ? I can tell you right now mateyboy No thanks.

    I can think of lots of reasons for you to live beyond June.... Let me count the ways....

    Oh and play a cancer card and get freebies for the concert... backstage pass at least?

    Off to see what your internet advice was.

    mwa wa wa witchy kisses dahling...

    Little My x

    ps what colour do you paint your nails when wearing your diamond shoes?

     

  • FormerMember
    FormerMember

    Hi Hilary

    Murraymint played havoc with my tear ducts...or bladder too close to my eyes! never been the same either.

    Had a few transfusions along the line. Used to amuse hubby and I when i was having chemo and there were a couple of men that used to be in for blood transfusions (some sort of anaemia). One was 96 and his son used to come to collect him to take him home and he couldn't keep up with him as he raced down the corridor :-)

    I never lost weight in all the time I was ill, but my sister used to text from Yorkshire to ask if i needed a cake run...her husband bakes for a farm shop in Barnsley. She would bring all sorts of goodies. Enjoy cake....now is not the time to worry about weight. You eat whatever and whenever you feel like it.

    Don't take bus when your immune system is crap. Tell hospital that you need transport, and they may be able to arrange something. We used to arrange for patients through the GP surgery I worked for.

    Going to see The Boss. How good is that? Must have a look if he's doing a gig nearby. More dancing on seats beckoning :-)

    Bring on Bruce and cookies and cakes, and F***off Crabby Cancer

    xxxxxxxxxxxxxxx (you can pass some on to Judy)xxxxxxxxxxxxxxx

  • FormerMember
    FormerMember

    p.s. slow-chemo-brain just remembered...

    Despite any amount of eye incontinence you experience, in no way shape or form (pumkin or otherwise) are you are wuss...

    Got it?

    xxx

  • FormerMember
    FormerMember

    Nothing wrong with a nice bit of blood Hils!

    If you are going to be after more blood I'd better get some garlic and a crucifix. Oh bet then again my ain't so hot and they took me off the blood donor list for ever when I told them I had the big C. Still they sent me a thank you letter and a certificate, now where did I put that.....

    Fangs for making me laugh, sorry about your mirror but some good improvisation there with stickers.

    I bet you will be buzzing after the transfusion so can't wait to read your prose!

    Flight times

    Tim xxx

  • FormerMember
    FormerMember

    Ah Hilary,

    DO NOT GET THE BUS!!!!!!!!!

    GP's should arrange transport for you; of course, the company of a good friend is much better so good luck with that.

    I never had chemo so never experienced this three week cycle of very yuck, slightly less yuck and just ordinary yuck.

    I had hormone injections every 4 weeks and my cycle was three weeks tired depressed and frustrated followed by one week of just tired! Oh, and it buggered up my blood sugar. But that isn't anywhere as bad as chemo, but then perhaps chemo is on a par with manflu?! Oh I forgot the belly and boobs and what a friend described as chemical castration! ( Fortunately the latter appears to be reversible). I suppose the boobs for a man are the equivalent of losing your hair for a woman, sorry I mean lady. We just have to grin and bare it (I mean bear it!, the former could be embarrasing, too much information.)

    If you are a wuss for having incontinent eyes for one week, what does that make me, whose eyes were incontinent for three weeks? (I hasten to add that it was only in the mornings; the tank had emptied by the afternoon.)

    When I said to my onco that I was trying to lose weight, he said that I was unique among cancer patients since most were trying to put it on. I felt very lonely, but now I am no longer alone so thankyou for joining me on the weight putter-onners step. Keep up the good work with all those cakes and goodies.

    WOW! Clement Attlee! Thanks for reminding me of that name, I'll try to remember it in future.

    Best Welsh cwtches, better than spoons for reviving energy, and can be taken in conjunction with blood transfusions with no side effects except perhaps a greater tendency to look on the bright side. tilt.

    Odin xxxxx