Lucky, lucky, lucky

5 minute read time.

Another blog post, I hear you ask. Why, Ambassador, you spoil us. But the good news, at least, the good news for me is, I don't actually have to do much writing on this one; most of it comes from a conversation I had with Little My. You see, I commented on someone's post that I felt like a fraud sometimes, when I read other people's stories, because - so far - my cancer experience hasn't been nearly as horrible as might have been feared. And then Little My rose up like the Doom of Ragnarok (or at any rate, I think she might've been looking at me severely over the rims of her glasses) and said, in so many words, are you mad, woman? And she listed a few of the things I've whined about in these pages - the lung drainage, the tiredness, the poorly tummy, the baldiness, and so on. And I said ...

Well, first I told her about a new poo song: Cat Stevens's I Can't Keep It In. But after that, I said ...

Judy tells me off too, every time I say I'm lucky, or that I'm doing fine - although her argument was that I was downplaying things to the doctor which would, it's true, be baaad. But, cancer-wise, I really am better off than many, probably most.

To get one thing out of the way: I don't know how bad it is. I don't know how long I've had it - if some of my suspicions are correct, it's been developing for a good many years. I don't know what the prognosis is, and I'm happy that way. I'm not looking any farther ahead than the end of chemo, which will be early in January, and the possible prospect of surgery after that. Judy thinks I might have to have another laparoscopy. I would very much rather not, but if it happens, it happens.

Now, Mr Crab hisself. These things are good: he is in my tummy. He is not in my face, my neck, my arse, my ladybits. All of these, I think, I would find much, much harder to bear. And - here's the thing: he doesn't hurt. Okay, maybe he hurts a bit, he can be quite bitey when he's in a bad mood, but I lived for forty-odd years with menstrual pains so far off the scale worse than Mr Crab that it's practically astronomical. As well as the menstrual cramps themselves (referred to, throughout my acquaintance, as 'Lady Pains' - let that be my legacy!), there was a knock-on effect of bowel pain so bad that it sometimes made me faint. I bled so heavily that I'd get in the bath and find myself surrounded by what appeared to be floating lumps of liver. There was mess, there was fuss, there was distress to the Nth degree. Cancer - at least for me, at least so far - is a doddle.

"Only women bleed," as Alice Cooper so rightly sang. I'm glad to say that I don't any more. It stopped, short, never to go again, when I was 50 or a little over.

Now, with hindsight, some of this might have been early warning signs of the cancer, which my consultants did originally think was ovarian. (I wish it had been. Then I'd have my own coffee morning!) We'll never know. I never took it to a doctor because, well, you don't go to a doctor with dysmenorrhea. You suck it up and take an aspirin. Or two. Or however many it takes.

And that, kids, is how Mommy became hooked on Solpadeine.

All righty, so much for the cancer. Poorly tummy/sickness = sleeping on the bathroom floor: a very rare occurrence; we do have carpet on the bathroom floor here; and, again, I sometimes used to have to do this when I had bad Lady Pains. And back then the loo wasn't in the bathroom, it was in a small, cramped, uncarpeted room on its own. Not at all comfy! (Going back to the fainting - I used to do this in the loo a lot. Having then to pick oneself up off the floor and somehow clean up blood, poo and pee, without anyone else knowing, probably doesn't equate to the Baggy Manoeuvre, but it's as close as I care to come.)

The draining of the lungs, I will grant you, was not nice, especially having to have it done twice in one week! But it's over now, I think - I hope - the lung is fixed, and we won't have to do that again. And I got a funny story out of it. No?

Chemo ... well. It is what it is. This is where the constant tiredness becomes a blessing. It may be six hours, but it's six hours that I pretty much doze through, while poor Judy gets to sit in an uncomfortable chair and occupy herself as best she can. I could do without the after-effects, especially the twinges up the girlbits and bum; on the other hand, I have not, as yet, spent my post-chemo hours puking my guts up. The extremely dodgy tummy on the way home last time was, I must say, Not Required On Voyage. Next time, I'm going armed with Imodium.

Baldness: I didn't think it would worry me too much, and it doesn't. It helps that I look quite good in hats (for a relative value of 'good', that is). And it'll grow back. If anyone else is bothered by it, well, fuck 'em. My hair = my business, and mine alone.

And that really just leaves the tiredness. As a blessing, it's a mixed one. It does mean that I'm more or less drifting through my life with cancer - I sleep more than I'm awake these days. On the other hand, there are things I want to doooo, or which need to be done. Internet stuff, for one. I've said before that I can really only do one thing a day at the moment. Internet-wise, I can blog, or I can answer comments, or I can comment on other people's blogs: not all three. RL-wise, our boot-buying Expotition to Bicester Village, which took maybe three-quarters of an hour, knocked me out for the rest of the afternoon. My wonderful brother comes every week from Bristol to see me, and after less than an hour I'm wiped out; my sister comes all the way from Penzance, and almost all I do is sleep at her! I couldn't go to a gig I'd been looking forward to since May. My house is a disgrace. And, you know what? If I weren't so tired, I'd be fit to go back to work, if they didn't mind me being in the loo half the time. As it is - no chance, not even for a few days a week, not even for half days.

There. That's pretty much the state of me. Taken all in all, it's not so bad, is it? And don't forget that I have Judy. And my dear, loving kitties, when they're not vanishing and sending me into a flat panic. And loads and loads of lovely friends, both online and three-dimensional, not one of whom has yet tilted their head at me.

So, okay, my 'lucky' may be in roughly the same ballpark as Alice Sebold's. But still. Better than no luck at all, eh?


Anonymous
  • FormerMember
    FormerMember

    Hilary

    Ken used to always say there are people much worse than me. I asked how could he say that when he had been given a terminal diagnosis. His reply was children with cancer at least I have had a life! I am not sure there is an answer to that one! I do know what you mean though, although he had cancer for 6 years and lost his battle recently he did not suffer in that way a lot of people on this site have. Until recently it remained in his face only and he got through chemo, radio, operations with relative ease compared to some. 

    Anyway fingers crossed for the future and hope the chemo works and no operation.

    Love Lynxx

  • FormerMember
    FormerMember

    Hilary, people always say to me that there is someone worse of than me, and having read your blog, I think I've found her.

    Lots of love and hugs,

    Colin xxx

  • FormerMember
    FormerMember

    Well I too can remember some scary moments for you like Little My but I too think you are lucky.  I tell my dad the same that his biggest issue is tiredness, but he likes to embrace it and go with it - given as though he's spent all his married life being told to get up and do something, now he has the excuse to stay laid down....

    But the tiredness is the chemo and not the cancer, we've found that with dad, he's nearly 4 weeks past last chemo and is back to walking miles a day (silly thing to do through the night in the hospital grounds and when he's not eating, energy usage and all that) but it's good to know energy is back quite quickly :)

    So relish and enjoy your days of being at home :)

    Oh I hear you on the lady pain too, mine is horrendous, never actually fainted but been very close.  Not good at all.  See a blessing there too, Mr Crab is a bit of a bugger but at least he doesn't cause you as much grief.

    Take care and eat cake xxxx

  • FormerMember
    FormerMember

    Hilary,

    I feel lucky that my op and treatment were 10 to 12 months ago now, and that is because with time I forget how shite I felt! So I now think I didn't have it so bad compared to some and I'm lucky I have a short memory.

    I don't think I should try to compare myself to other, otherwise I may become a head tilter ;-) Certainly cannot compare myself to your nasty lady pains you had to suffer in the past oooh!

    Tight Lines

    Tim xxx

  • FormerMember
    FormerMember

    Hilary, as I see it, whichever type of cancer is inflicted on people it's still the same nasty disease that no one wants and the treatments to kill it are sometimes bordering on barbaric ......... I only say that because my experience of radiotherapy felt just so. Lord knows how I would have coped with chemo on top of that - as indeed a lot of poor souls have to do - I think I would have just thrown the towel in !

    So I do think that you have every reason to moan or gripe when you feel down - a walk in the park, it ain't ! Plus I can appreciate your tiredness as even after three years from my RT finishing I still feel like the nuclear fallout is affecting me some days ......... hence my early duvet nights.

    So enjoy being at home rather than going to work - you need the rest in order for your body to recover from the treatment - and most of all enjoy those lovely kitty cats of yours, bundles of fluff to cuddle ! 

    Love, Joycee xx