phew...only a registrar

1 minute read time.

…so that’s okay then.

That explains my overlong visit and descent into worry… the person I saw on Monday is a new(ish) and enthusiastic registrar. No wonder I was in there so long.

Yesterday was R-CHOP (chemo) number 5.

Having had a vomiting session the day before (very like the one at the beginning of this cycle- but not worth going into hospital with) I was weak as a kitten and slept through most of the chemo drip, waking up in time for my ham sandwich and trifle to be brought to me.

As the nurse in charge of my chemo session had to go and book me in with the consultant for my intrathecal (lumbar puncture) chemo I asked her to also check which scan I would actually be going for as Tuesdays doctor had changed the original referral to a PET – which I could see the point of more -especially as the registrar (well..i know he’s a registrar NOW) had said a CAT scan was just a glorified X-Ray.

She came back with the news that the CAT scan stands.

Not sure the registrar still will much longer if he keeps messing with the consusltant :)

So… thats sorted… and with that knowledge it chips away at  the hypothetical future worry fest he initiated… It’s nice to know theres a plan B and a plan C before they give up on me….but I think I prefer the ‘lets get this plan over with before opening the next door wide open’ method.

So…. CAT scan a couple of weeks from now and THEN I look at the options.

With my consultant.

..oh and Monday will be my last intrathecal chemo… thanks christ for that!

Anonymous
  • FormerMember
    FormerMember

    Hello, you're story sounds very similar to mine and I fully endorse 'thanks christ for the last intrathecal chemo", it was the one of the worse parts for me.  I had four all done with the radiologist cos they could never get it in.  I've had one chemo  without it and the side effects were not so bad.  I have chemo number 6 next week sometime, my doc is ringing me on monday to tell me when.

    Did you have a PET scan after chemo number 3 to see how it was going?  I had one then and have another one in April so see if its all gone.

    I have a friend who has to remind me not to worry about what hasn't happened yet and take one day and appointment at a time, so I normally take a deep breath and try not to think about the what ifs (easier said than done sometimes).  

    Good luck tomorrow and with your scan. 

  • FormerMember
    FormerMember

    looks like we are on a similar time line (and hair do)! I'm 'lucky' in that my lymphoma is just in one place (wrapped around my colon) and a-typical as it is totally outside any lymph glands/nodes.... so hopefully a matter of blast it and run.
    But yes... PET after cycle 3 and now a CAT in a couple of weeks.

    I'd done really well with the staying chipper and taking it one step at a time until my appointment with the over enthusiastic registrar.... I'll have a grumble about him to the consultant to take my mind off her sticking the needle in my spine on Monday :)

    Thanks for the 'good luck' ....same backatcha... or bonne chance even.