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Womb (uterus) cancer

A place for people affected by womb cancer (also known as uterus or endometrial cancer) to support one another, ask questions, and share their experiences.

Post op recovery

Pasadena
Posted by

Hoi everybody,  I'm post op laparoscopic hysterectomy and bilateral  salpingno-oophorectomy (24/12/19), I still can't lie flat, and have lower back ache if I stand for more than 15 mins. I'm oké walking for 20 mins before I need to stop. How did others manage please?

Pasadena
Nannasuki
Posted by

Morning  Pasadena, I was well on the road to recovery after 2 months so unable to help with any coping mechanisms. Have you reported this to your team?  Maybe they can suggest something? Don't suffer in silence, get it checked out. 

Hope you get some advice and relief soon, 

Love Nannasuki x

Lesley M
Posted by

Hi there

i had exact same op on 13th Jan i dp get back ache but no problem lyin down I would check with your CNS

Lesley

Pasadena
Posted by

Morning right back at you Nannasuki,

Thank you for replying. I'm wondering if I am over worrying because logically everyone recovers differently, health and age being factors and zo. The times we have contacted our support nurse we either get an answering machine or an admin worker, in either case, nobody ever gets back to us. I'm due a check-up in April so will totaaly raise it all if I'm not any better. Thanks again grs. Pasadena x

Pasadena
Pasadena
Posted by

Hi Lesley,

Thank you for replying. Getting a reply from the support nurse is a tad difficult as we can never get hold of her! it is always an answering machine or the admin. I have got a check-up in April so will follow up then. good luck with your recovery.

Pasadena
Nannasuki
Posted by

Hi Pasadena, so sorry you're not getting the support from your CNS. Although I do find it difficult to get through to her at times, she does phone back eventually and she's been fantastic! Would it be worth seeing your GP as they can perhaps get answers when we can't. 

Take care

Love Nannasuki xx

LorraineL
Posted by

Hi i had attempted keyhole then abdominal hysterectomy and bilateral salpinoophrectomy  altjough a little tired i too am knackered after walking short distance. Frustrating also my diagnosis was ? due to tamoxifen. Any others have this. 4 weeks post op no follow up still not got biopsy results... presuming no news is good news

Lorraine

papermoon
Posted by

Hi Pasadena are you due a checkup anytime soon? If not and you can't get any joy from your CNS I suggest ringing your consultants secretary and ask her to inform your consultant. 3 months is a long time the whole idea of keyhole is that it's not so intrusive and that recovery is faster. My advice is not to suffer in silence.

RollercoasterRide
Posted by

Hi      I had the same LAVH-BSO as you but on 14/1/20.   I've been feeling fully recovered for a couple of weeks now and am back to normal activities.  I would definitely contact your consultant for advice as it doesn't seem right that you are still experiencing these problems.  Did you have a good level of fitness before the op?  Have you been doing your pelvic floor exercises?   

xx

BallyBee
Posted by

Hi Pasadena

i had the same operation as you on the 14th January, I’ve never suffered the issues you have. I felt fine after a couple of weeks and I am now into my 3rd week back at work on a phased return. You shouldn’t have to suffer like that, contact your GP if you can’t get your CNS

Hope you are better soon x

Pasadena
Posted by

Hi Nanasuki, sorry for so late to reply, but various things have got in the way,  things have improved - I can now lie flat and was walking much further...although that has come to a bit of the halt now due to Covid-19. Still I can potter in the garden so all is not lost. How goes it with you?

Pasadena
Pasadena
Posted by

Hi BallyBee - sorry for late reply, things got in the way. I'm so pleased for you for your speed of recovery, I am now possible to lie flat which is the huge relief I can tell you! good luck to your continued recovery x

Pasadena
Pasadena
Posted by

Hi LorraineL sorry for this late reply, things have got in the way. With me I had the hysteroscopy then hysterectomy etc, because the hysteroscopy indicated endometrial cancer. I had the results from the hysteroscopy within the week, and the follow up from the op within the month, it could be that because of the Covid-19  your biopsy results has delayed? maybe your Key worker can advise? It is hard very hard however better to think positive do the things you can do, and rest much. the abdominal op takes a littel bit longer time to make a recovery from, so being knackered is normaal. Keep in touch grs Pasadena

Pasadena