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Womb (uterus) cancer

A place for people affected by womb cancer (also known as uterus or endometrial cancer) to support one another, ask questions, and share their experiences.

Scared - endometrial thickness

Anotherorchid
Posted by

I'm sorry if this is the wrong place to post. I had a TV ultrasound today and my endometrial thickness is 9mm. My GP thinks I'm perimenopausal based on a high FSH. I had missed a period then had light bleeding for 15 days, which finished 10 days before the scan. I'm so scared that the endometrial thickness indicates I could have uterine cancer. The results are going to my GP but I don't know when I can see my GP. I'm so scared. Thanks for any advice. 

papermoon
Posted by

Hi another-orchid leading up to the menopause what you're describing is totally normal irregular bleeding and 9mm is not particularly thick mine was 22mm and irregular. Only 10% of abnormal bleeding is cancer related and most cancer appears after the menopause. When you say you don't know when you can see your GP did they not tell you how long the result would take? I'm sure your GP wouid contact you if anything worrying was found or you could phone the surgery to see if the result is back. Please try not to worry at this and anyone is welcome on the forum anytime!

Anotherorchid
Posted by

Thank you so much for your rapid and reassuring response. Apparently the result has been sent to the GP, its just trying to get an appointment which is the problem. Was your 22mm reading pre menopause and was a reason given for it? Did they do a biopsy after that? Thanks again

papermoon
Posted by

Does your GP do telephone appointments? As I say though I'm sure you would be notified if there was anything amiss. I was post menopause and the thickness was due to endometrial cancer sorry I didn't make that clear. The biopsy was unsuccessful they didn't get enough tissue it was found under G.A.

Anotherorchid
Posted by

Thanks again. I hope you're doing well now. 

NannyAnny
Posted by

Hi Anotherorchid,

When I started the menopause about 47 years old, I well remember missing a period. After 2 difficult pregnancies I really didn't want any more!! I knew I had to see a doctor sharpish.( no pregnancy tests in those days) The result wasn't pregnancy, and after that my periods, and length of them, were all over the place. Sometimes I flooded, sometimes I had nothing. I refused HRT due to hormone problems after 2 miscarriages.

Fast forward 30 years and when I was diagnosed with womb cancer I only had 2 very small bleeds, nothing like my menopause ones! I have to say I was quite glad to see the back of my womb. I had such a lot of problems with it over the years.You're problems could be anything. Hope you are sorted out soon. xxxx

Anotherorchid
Posted by

Thank you for your reply. I hope you're well now. How was your womb cancer diagnosed if you don't mind me asking? Thanks again. 

NannyAnny
Posted by

Hi Again, 

I don't mind answering any questions if it helps. I had a very slight pinkish discharge, just a blob. I thought I had caught myself somehow and decided to wait and see. 3 weeks later I had more of a smear of blood. That was on a Sunday, and by Monday morning I was at the doctors!! He said he thought it was cancer straight away, but I needed proof!! I was then referred to the hospital where I  had a camera put in the womb. The nurse said I had a fibroid in there and the consultant said that was 'of little consequence'. My lining was normal, but he then decided to do a biopsy.  I later had scans to see exactly what was going on. Fortunately I only needed a hysterectomy, and have been fine for nearly 3 years now.

I think it was picked up early because I went to the doctor straight away. I've had years in the past of looking for miscarriages, so the alarm bells rang straight away!! I knew bleeding well after the menopause was not right. I feel quite sorry for younger women when its not clear what is happening.I was a nervous wreck when I thought I was pregnant, but it turned out to be the menopause!! xxxxx

Anotherorchid
Posted by

Thank you. I appreciate you telling me some of your story. I'm glad you picked up on it straight away. Kind regards. 

papermoon
Posted by

Early diagnosis is so important and because post menopause bleeding is an indicator that somethings wrong (or abnormal bleeding at a younger age) then quite often it's caught early at stage 1 and easily treated with surgery. I had bleeding off and on for 3 years before I was diagnosed and by which time it was stage 3 and I relapsed 3 years later. There were a catalogue of errors that led to delayed diagnosis lost notes mixed up ultrasound scans and I should have made more fuss but I had already gone through melanoma with skin grafts and convinced myself it couldn't be cancer again, How wrong I was. So I always urge women now to seek medical advice and if not happy don't stop, better to be safe than sorry!

Anotherorchid
Posted by

Oh papermoon, that sounds awful. I'm so sorry to hear you had such a bad experience. I hope you are feeling well now. 

Lesley M
Posted by

Hi I too had the same as nanny Annie I’m just 6 weeks post op if  can help anyway pls askmeme any questions

Lesley x

Anotherorchid
Posted by

Thanks Lesley, that's very generous of you. I feel so scared because I don't know what's going on with my body, if there is something wrong, if I'll be listened to by the GP that I feel something is wrong. I don't know the right things to ask when I see the GP, should I be seeing a gynaecologist? Do I need a biopsy? I would be so willing to have a radical hysterectomy to be honest for psychological reasons - I spoke about it two years ago to a metal professional but never got any further. Is this completely ridiculous of me to ask about? I literally didn't cope with puberty 30 years ago, and have been severely anorexic for most of those years, as well as having complex PTSD. I'm just not coping with what's going on in my body. It could all be perimenopausal symptoms I guess, but equally it could be something else, and I want to make sure I know what to say to the doctor to make sure that everything is checked before she just puts me on HRT which was her initial plan without me having a scan. Thanks again for any advice. 

NannyAnny
Posted by

Hi  Anotherorchid,

I think your first port of call is the GP. If they think there is something wrong they will refer you to the hospital. If you feel you need a second opinion, you can opt to go privately, but that will cost money.

Years ago my periods were all over the place after coming off the pill (not much information in those days). I missed a period, went to my doctor, who said I was pregnant(no water test). A month later I had a period, although I was told it was a miscarriage (no pain, nothing) 2 months later I missed a period again, and this time was told to go away and forget about everything. I was at my wits end, didn't trust the doctor anymore, and decided to pay privately to see what was going on. He did a water test and said I was pregnant. I changed doctors after that as I literally shook when I saw the first one.

So, I do know how you feel. 

I don't think they will do a hysterectomy just because you want one. It's a big operation, and if you don't actually need an operation, I wouldn't have one.

I don't know anything about HRT, so can't help there. I struggled through the menopause by letting Nature take it's course!! Can't say it was pleasant, but it doesn't last forever.

Have you seen the doctor again for your results?  xxx

Lesley M
Posted by

Hi anotherchild

Have u managed to get any results yet ? X