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Hi everyone. Just come back from seeing the oncologist and I do have a recurrence and the little bugger has escaped to my liver and lymph nodes in my chest. The team have been amazing and have managed to get me booked in for the first chemo tomorrow. I'm in shock as I really wasn't expecting that. My CNS says that I will now have to learn to live with it and I may need more treatment in the future.
Lots to digest but it's not going to beat me. I'm declaring war on cancer so it better watch out!!
Take care lovely ladies.
Hello Nannasuki I'm very sorry to hear this. What a blow. It sounds like your team has a plan and great that they can start treatment so quickly. I'm sure your positive attitude will stand you in good stead over the coming weeks. I'm sending you some gentle supportive hugs and lots of good wishes. You are in my thoughts and prayers xx
At least you don't have long to worry about the chemo. Maybe the best way!
All the very best for your treatment. xxxxx
Nannasuki, I am really very sorry to hear about the bugger escaping and deciding your liver and chest lymph nodes was a great place to go too. I am really pleased to hear though that you clearly have a fantastic team looking out for you and getting you booked in for chemo tomorrow. I know tonight lots to digest but as you say in your positive altitude your not going to let it bet you, your positive altitude will help get you though tough times. I am wishing you every strength and positive thoughts to you. Good luck tomorrow with your first chemo
And for good measure sending you a big hug your way.
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So sorry to hear your news Nannasuki but you sound very positive and I am sure you will beat this.
Sending hugs, Lesley xx
Thanks everyone. If anyone has any tips for getting through chemo I would be very grateful. What head coverings did you find best etc?
Good evening ladies. I had my first chemo session today. It wasn't as bad as I'd feared but it was a long day. I did get lunch though which was a nice surprise and the meal I chose was very tasty! Came home with lots of meds and dire warnings to phone the helpline if anything doesn't feel right! I know they have to do that but it does make me feel stressed in case I don't report something I should have done!
Feeling fine so far. Let's see what tomorrow brings. Maybe I should join the chemo group as well for more specific support.
Night night everyone, sleep tight xx Sending a special goodnight kiss to Mrs Woodentop.
I'm glad the first one went ok nannasuki. It's awful when you step into unknown territory but thank goodness we have got all our friends on here we can refer too. I hope tomorrow goes just as well for you. Sleep well..God bless and as you say, a special goodnight kiss for Mrs Woodentop. Love lamb.xx
I am glad it went OK today Nannasuki,
I agree and what a lovely thought. Sending Mrs Wooden top a special goodnight kiss, so she rests peacefully.
Hello Nannasuki Im glad your first chemo went well and I hope that you don’t have too many side effects. Yes it’s daunting especially when they give you all the warnings and the number for the on-call oncologist. I had 6 cycles of chemo (carboatin/paclitaxol ) in 2016. I only called the on-call oncologist once and that was when I developed a horrid, hive-type rash. She was fab, told me exactly what to do, what strength antihistamines to buy, how much to take etc and told me to call back if this didn’t help. It did and I was fine and the next cycle they gave me extra antihistamines with all the pre-infusion meds and it never happened again.
My top tips would be ginger (ginger biscuits or ginger tea) to help with nausea, take your anti sickness meds regularly, keep well hydrated to flush out the toxins, pineapple (fresh or tinned) for any metallic tastes in your mouth, Cordosil mouthwash for moth ulcers, eat small, light meals if you feel sick. When you feel well, eat good proteins to build up and repair the good cells that are being damaged by the chemo. Now is not the time to diet - if you fancy something, eat it!
Yoyll probably find you need to pace yourself as you get further in to treatment. There’s nothing wrong with having a sofa day if you need to, but do try to take a day walk (however short) because it helps to fight fatigue.
You asked about wigs etc. I had 2 during my chemo months. The second one had a lace front and was much more natural looking around the hairline, plus you can put a parting in if you want to. I had a couple of scarves but to be honest I preferred the wig in terms of looking like me and retaining some confidence. If you get offered the chance to do a Looking Good, Feeling Great session grab it - a fun couple of hours helping with make up tips, drawing on eyebrows etc plus a fabulous goodie bag full of wonderful products. My daughters were very interested when they saw the top name foundation and lipstick in mine!
Last tips - keep a diary of any symptoms and if you get any odd rashes take a picture on your phone to show your team. Always ring them if in any doubt or with any concerns. They want you to get through this in the best shape possible. Looking back, chemo was very tough going at times but doable. You can do this and we are all here to cheer you on xx
Thank you Fairycake, you given me some really helpful information. I'm going for a wig consultation tomorrow. I'll try to find out if my cancer centre do the looking good sessions. I'm keeping a daily diary so I can see the pattern for each cycle so I can plan days out.
Hi Fairycake, wig purchased today. Really pleased with it! I've found out when the Looking Good Feel Good sessions are in my town and will book myself in. Would you advise doing it part way through the treatment or wait until I've finished?
Hi Fairycake, wig purchased today and I'm really pleased with it. I've found out details of Looking Good sessions in my town and will definitely attend one. Would you advise doing it part way through treatment or is it better to wait until the treatment is over?
Thanks Nannasuki xx
Hello Nannasuki I did my session quite early, between the first two chemo sessions. I wanted to feel well when I did the session. I'd rarely worn make up before treatment, just the odd dash of mascara on special occasions so I was a total makeup novice. I wanted to do the session to boost my confidence as my hair was already thinning from the chemo. There were about ten of us at the session with two ladies from a local hair and beauty salon leading. The participants were all at various stages of treatment so it was interesting to see the transformations. One lady had her sons wedding the following month so had booked in to get some tuition and practice before the big day. The leaders demonstrated a technique on each,day so one lady had one eyebrow drawn, the did the other herself, the leader did my lips and so on. We had lots of help and support as the leaders went round between each demo, assisting and encouraging us to try out what we'd just seen. It felt very odd going home on the bus in a full face of makeup. I sent my daughters a selfie and got their seal of approval so I felt less self conscious. I hope you enjoy the session. Take care x
Morning Fairycake, thanks for that really helpful insight. I've got the dates for the workshops in my area and the next one will be when I have been warned I could feel not at my best. The session after that coincides with chemo number 3 so I think I'll try for the one in May as that appears to fit it quite well with my treatment schedule. I'm looking forward to it!
Love to everyone else on the forum and hope you are all doing well.
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