Womb (uterus) cancer

A place for people affected by womb cancer (also known as uterus or endometrial cancer) to support one another, ask questions, and share their experiences.

So relieved and happy

Free at Last
Posted by

Having had my laparoscopic hysterectomy 4 weeks ago today, I went for my post op check-up this morning (should have gone on Tuesday but the hospital rang to say it had been postponed which was a bit nerve-wracking).  The news was as good as it could possibly be.  The histology study confirmed the diagnoses as adenocarcinoma, Grade 1, stage 1a meaning that the cancer was confined to the uterus with the tumour having penetrated less than 50% of the womb lining, and there was no evidence of any lymph nodes being affected.  So I will not need any further treatment such as radiotherapy or chemotherapy, I will just have check-ups at six-monthly intervals for the next two years, when they will do internal ultrasounds, which is reassuring.  

The doctor has cleared me to start swimming again in December which I am very pleased about as I am getting so bored although feeling very well physically.  I won't try going back to the gym for at least another month as I don't want to push my luck.

I'm so grateful to the doctors and other hospital staff for the excellent treatment I've had, to the volunteer translators at the hospital (I'm in Spain and I do speak Spanish but wanted to make sure I didn't miss anything re medical terms for something as important as this) and to all of you on the forum who have helped so much by sharing your combined knowledge and experiences.

I hope all of you will have a wonderful Christmas and a Happy New Year

Love

Lynn

x

NannyAnny
Posted by

Hi,

That's excellent news!! Same diagnosis (nearly) as my own.

Happy Christmas and a better year to you!!!  xxxxxx

Poppysmum27
Posted by

Great news Lynn!  You must be so pleased.  Have a lovely Christmas too!

Hugs, Lesley xx

Arla
Posted by

Hi Lynn,

Fab news, I hope you have some special treats planned to celebrate.

lots of love 

xxx

Carolina61
Posted by

Wonderful news! I  had the same diagnosis following my hysterectomy  in August but am now on the patient initiated follow up. I am feeling fine and back to doing more or less everything  I was doing before, even the hoovering!  Take care.

Carolina61
Tracey B
Posted by

WHOOP WHOOP!!!!!

That's fab news!

THE best Christmas present ever!

Thanks for sharing your good news with us Lynn.

2019 can 'do-one' here's to a bright and happy 2020

Lotasaluv Tracey xxx

Tracey B :)

nightingale19
Posted by

This is great news for you. Really pleased for you. My initial Stage is 1a  but type 3 serous cancer. This is more aggressive than type 1 and I fear that even after my op, and even if they find  it has not spreads beyond the uterus as a polyp, I will still be recommended for addition treatment. My original Consultant at my home hospital said if it was all clear I could probably expect close observation afterwards. The first cancer nurse said I might be recommended for just a short round of radiation treatment and my second cancer nurse that I could expect radiation and ca chemo therapy even if I got the all clear as it is serous cancer.

So I asked my sister in law, who is a bio chemist and used to do cancer research, to research  the current thinking for my case, and she said that it seems doctors differ on how to treat patients, with serous cancer and a clear bill of health  from the op. Some recommend close observation, some go for  for belt and braces. Of course it will all be academic if further signs are found from the operation. I am due back on Monday which is only 10 days after the operation. I don't know if I should worry if this is a good or bad sign. 

Meanwhile I am still. finding the self injections deeply distressing. I did ring the surgery and was told I would have to come in and discuss it with the practice nurse. The surgery is a 20 minute bus ride each way and while OH could drop me off. I can't expect him to take me there and back daily and I am not sure I am quite up to public transport yet. I only came out on Friday night. I appreciate being able to talk here. 

Free at Last
Posted by

Thank you.  It must be very confusing and distressing for you to be getting conflicting views from various health professionals about what kind of additional treatment you are likely to need, more uncertainty is just what you don't need in this situation.    If you are likely to be able to find out only 10 days after the operation, personally I would see that as a good thing as the longer you have to wait and worry, the worse it is.

I'm sorry you are having such a hard time with the anti-coagulant injections.  I don't know if there are any such services in the UK, but here there are plenty of small private clinics and even private nurses' offices where it is possible to go and ask for things like dressings to be changed or injections given - I went to one myself a couple of weeks ago to have my flu jab administered as I'm not yet old enough to qualify for a free one via the public health service here.  Of course that would have to be paid for, but if it could be managed, would that help you at all?  I know some of the large pharmacy chains (Boots, for example) or even supermarket pharmacies offer the flu jab (for a fee) so would it be worth investigating if one of them could do it for you?

Fairycake
Posted by

Hello Lynn @Free at Last, Fabulous news! Doing a little happy dance in celebration for you . It's great to hear you're healing well and that you feel ready to resume lots of your normal activities. Sending you lots of good wishes x

LittleRunner
Posted by

Good news for you Free At Last, and so brave to go through this in a foreign country with the language issue.  I had the same diagnosis as you 2 years ago.  I don't know about gym but I do running and cycling: I was told not to for about 3 months, then I started from scratch and built my distances up gradually (I had terrible episodes of fatigue at first), then about a year post-op and wanting to step up how much I was doing, I went to a private physio (gynae specialist) for a few sessions.  She examined me, gave me specific exercises to do, and helped my confidence as I was in fear of damaging my internal operated bits. So, be careful about getting back into the gym and maybe seek some specialist advice like I did.  Even a year after surgery I had some big spasms in my abdominal muscles when I exerted myself, quite a peculiar sensation, and it was good to be able to talk to the physio about it.

Free at Last
Posted by

Thank you LittleRunner, that's really interesting.  I will see how I go with the swimming for at least a month before I think about venturing back to the gym, and when I do I won't be doing anything high impact at first.

I have already started following the same cardiac rehabilitation exercise  programme (devised by St Thomas's Hospital in London) that I used after my heart surgery last year, and have suffered no ill effects, fatigue or pain.  It doesn't involve any abdominal exercises, just gradually increasing low impact cardiovascular stuff and introducing very light weights once you reach the third level (I haven't got that far yet!).  

Little lamb
Posted by

I'm so pleased that you received good news free at last..just what you needed to hear. I'm pleased you are able to start swimming again too. Put this year behind you now and look forward to a better year in 2020. Wishing you and your family a very merry Christmas and a peaceful new year. Love lamb.xx

Free at Last
Posted by

I mentioned that I am to have six-monthly checkups for the next two years.  I was a bit surprised, though, to find a letter waiting for me when I got home from a day out yesterday, giving me an appointment for my first checkup on 21 May 2020!  They are certainly well organised, more so than me I suspect, I will have to put it somewhere safe to make sure I can still find it when the date comes around..

Latin Traveller
Posted by

Hello Little Runner, 

it was helpful reading your post as I have been recovering from the same diagnosis  as Free at Last. 
I had my hysterectomy in October and I am starting to feel better, and sleeping better than the last few years. 
However I find just going out for coffee and a short drive with a friend exhausts me. I end up with no physical energy and the sense of fatigue is frustrating.

i had conflicting advice about how long recovery takes; but am realising that the body has its own way of telling me it needs rest.

I live alone but have carers in to help. I was totally unprepared for the cancer diagnosis, and feel a bit of a fraud taking so much time to recover. I was expecting it to be just 6 weeks before I was back to my normal’ I get easily bored.

its helpful to know you are further along in the recovery but found fatigue a problem initially.  Do you have any tips about managing fatigue in these early months?

Free at Last
Posted by

Hi Latin Traveller - I don't think, from reading everyone's stories here, that there is any such thing as a normal recovery time after a hysterectomy.  Each person's experience will be different and you certainly shouldn't feel a "fraud".  Letting your own body tell you what it needs is the key, I think.

I haven't had much of a problem with fatigue - until last Friday!  I went on a day out last Thursday where I was out from 7.30 am until 8.30 pm, with a coach journey of 3 hours each way and quite a lot of walking about whilst I was at my destination.  I felt shattered when I got home and for the next 2 days it was a big effort just to get myself off the sofa.  Let that be a lesson to me, don't try to do too much.

I did go swimming on Monday and really enjoyed it, but haven't been again this week as that would be pushing my luck I think.

Boredom, for me, has been the worst thing about the recovery process so I certainly sympathise with you there.  I love to read and never thought I would find myself thinking I'd had enough of reading for one day, but I have.