Womb (uterus) cancer

A place for people affected by womb cancer (also known as uterus or endometrial cancer) to support one another, ask questions, and share their experiences.

post total hysterectomy - cyst

KatieBH
Posted by

Hi all,

Glad to see this group is still going strong with the invaluable support it provdes for all the women who come here.

Does anyone here have any experience of developing a cyst well after their endometerial CA treatment? I had a total hysterectomy 4 years ago for stage 1 grade 1. Today I had a CT scan checking for kidney stones, and although there's none of those (yay!) the scan did show up a 3.7cm adnexal cyst. I've reported it to my CNS but wondered if this is something anyone here has come across?

Thanks and big love and hugs to you all

Katie x

Arla
Posted by

Hi Katie,

i had my op nearly two years ago for stage 1a grade 1 cancer. I don't remember anyone mentioning a cyst in a post over the last wee while but I'm sure others will reply if they have. 

I found a hard lump in my stomach, it's above my belly button to the right a bit, it feels like a pebble, my doctor said it's probably a fatty lump or a cyst, I actually went on Tuesday about it, and that I've to go back if it gets bigger (she said above 5cm) or causes me any discomfort or symptoms, but I've an MRI scan coming up soon so hopefully that can put my mind at rest. I don't think I'll be happy until my surgeon tells me it's ok. 

I think it's a good idea telling your cns about it, your gp might be able to give you more information whilst you wait on your gynae team getting back to you.

lots of love and please let us know how you get on

xxx

KatieBH
Posted by

Thanks for your reply Aria. I did a search through the board but it didn’t raise anything. My research suggests that these cysts, if malignant, are a symptom of ovarian CA. 

I am getting a copy of the scan on monday so I can send it to my CNS, and she said the consultant would be looking at previous scans. As my next follow up isn’t until April 2020 I am hoping they will bring the appt forward as even if out is benign I want to ask for it to be removed (surgically). My body seems to like to grow things that don’t belong (Dermoid cyst, recurring endometriosis and eventually cancer).

Will definitely hang around for a while so will share any developments

x

Arla
Posted by

That sounds like a good plan, my team have always been amazing at this sort of thing and at bringing appointments forward if they need to, so hopefully your team will do the same. 

xxx