Womb (uterus) cancer

A place for people affected by womb cancer (also known as uterus or endometrial cancer) to support one another, ask questions, and share their experiences.

Struggling with hormone treatment

Meg1511
Posted by

Has anyone been on Provera before?

Im on 200mg a day plus the mirena coil and I’m struggling with the effects of it. Headaches, cramps and fatigue but mostly the emotions! My body is being overloaded with hormones and I want to burst into tears one minute and scream the next. My mood is plummeting and I’m hating it.

Its better than the alternatives but I am struggling. Any tips? I also lack a brain at the moment and struggle to concentrate on anything! 

Xx

Diana13
Posted by

Hey x I’ve been on 200mg twice a day plus the mirena I know exactly how you feel and it’s awful. I suffer with hot flushes and weight gain also I choose this option as I want to have a family and that is what I keep in mind all the time. My gp also gave me iron tablets as my levels were low not sure if it is due to the hormones but it helped with being exhausted all the time so might be worth having some bloods done in case your lacking anything there. My cramps are from the coil it settles but I do still get the odd one that stops me in my tracks. I think taking it a bit easier and slowing down a bit rather than rushing about has helped me a lot . Hope you start to feel a better soon x 

Lass
Posted by

Hey Meg, 

Your body should even out in time and get used to it. So it should get better! 

Headaches - Ibuprofen and paracetamol if you're OK taking them.

Fatigue - naps and a good diet with no simple or processed carbs. And make sure lunch is a combination of protein and carbs to give to slow release energy to see you through the afternoon. 

Cramps - Tonic Water. If you're getting them in the day, a glass first thing in the morning. If they are nighttime cramps then a glass before bed. (This is for muscle cramps. Is that what you're having or period cramps?) 

Emotions and mood could be a combination of the hormones and the diagnosis and just everything that's going on. You could try doing nice things, or maybe looking into counselling, or try distraction techniques, or mindfulness even, as they'll all help in different ways.

The other thing is make sure you're getting a good 7 or 8 hours sleep each night. It'll do wonders for the fatigue and the mood. So pick your bedtime, then at least an hour before, turn off all screens and make sure any lights that are on are low level. Don't drink any caffeine or alcohol within 3 hours of bed. Then try reading in bed to turn off your brain, as you feel your eyes drooping, just let yourself go. The other thing to try is a cool shower right before you want to sleep. So shower, towel dry, then straight into bed, because the body warming itself up after the cold puts it into sleep mode. A warm drink is the other technique too so milk and honey, or malted milk, something soothing but caffeine free of course.

And remember, after your womb is all clear then they will probably reduce your oral dose down too. So that's something to hold out for. 

Lass

Xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh

Littlemisssscared
Posted by

I’m currently on 600mg a day but no coil. I think I’ve been very lucky with none of those side effects but I have gained loads weight since increasing the dosage. Hopefully it will get better in time and is definitely better than surgery x 

Meg1511
Posted by

Thank you Diana, I’ll ask about having bloods done! How long have you been on treatment if you don’t mind me asking? 

Its hard for me to slow down with my job, I work in a children’s home and do anywhere from 40-50 hours a week  it’s all shift work too which probably doesn’t help! Thank you xx

Meg1511
Posted by

Thank you Lass that’s all really helpful! Never heard of tonic water for cramps - I’ll give that a go! 

I think the emotions is a combination of everything! I am sleeping a lot when I’m not working, sometimes 10/11 hours but could still nap through the day! I do sleep ins at work so don’t get much sleep then which adds to the fatigue. 

Mom going to contact my GP tomorrow and ask about counselling. I’m really struggling with low mood and anxiety. I won’t know if the hormones have worked until August and that’s what’s making me so anxious! I’m not sure how to manage it so could do with a little help. 

Thank you so much for the advice xx

Lass
Posted by

Yeh, if you've got chronic cramping, like in your legs, then they prescribe quinine tablets. However, the tablets have a number of common and nasty side effects. So my Dr always, apparently, suggests trying tonic water first as it's a natural source of quinine. I was getting horrible cramps after being put onto a blood pressure medication, and a little can of tonic water each morning has totally got rid of them. Well, 99%of them. One still slips through now and again. Lol

There is also a thing of too much sleep, which seems to make you need more sleep. Bit backwards, but bodies are bloody weird! Lol. So I'd def try and get a routine of when you go to bed and when you get up. Bit difficult if you've an odd job, but you'll know what you can manage. The change in diet should hopefully help too. Do you wear a health tracker at all? Those sometimes measure quality of sleep. So is the sleep you're getting good sleep or restless sleep? Could explain why you need extra if you're not getting good quality sleep. 

The other thing, sleepiness is also a sign of depression. So if your mood is all over the place, that could be adding to the sleepiness too.

I'd suggest your Mum contact your specialist rather than your GP. Mental health support has all but been discontinued under the NHS. Don't think the Conservatives thought it necessary..... However, some hospitals, especially cancer centres, have counselling for patients to help them cope with diagnosis and treatment. I mean try the GP too, no harm no foul. But I'm not sure it'll be much use. The other suggestion would be to contact your local Macmillan Centre or Maggie Centre. Both of them sometimes offer counselling support, depending on budget, volunteers, and availability.

In the meantime, you've always us to talk to here. There's usually someone around when needed. I'm here for the blunt, straight talking, and everyone else can do the hugs and sympathetic noises. So we've got all needs covered. Lol

Lass

Xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh

Meg1511
Posted by

I’ve heard that about too much sleep as well! Can’t win can we! Need to find a happy medium. 

I’ll contact my Macmillan nurse and ask about counselling. I think it would help. It’s sometimes hard talking about it because I don’t know what to say. But if I don’t talk about it I feel like I might burst with all the emotions! Bloody hormones!

I hope after all this they are working! I’m terrified come August there won’t be any change in the biopsy results! I’ve heard it takes quite some time to see if there’s any change  I’ve been on them almost 3 weeks so by the time of my biopsy it would be kind of 14-16 ish weeks. I don’t have a date yet xx