Womb (uterus) cancer

A place for people affected by womb cancer (also known as uterus or endometrial cancer) to support one another, ask questions, and share their experiences.

Post Menopausal Bleeding - Suspected Endometrial Cancer

MidsomerMadness
Posted by

, I’m pleased you’ve managed to at last get some communication...you seem to be following the same route as me, biopsy, hysteroscopy, etc, hopefully they will be able to remove your polyp at the same time and avoid you having to have another hysteroscopy under general to remove it as happened with me.  Of course unfortunately it means more waiting for appointments and then another wait for biopsy, hopefully this time things will happen quicker for you x

Army
Posted by

Well the Dr said it was a hysterectomy and polyp removal and then biopsy of that. its just mad it's took 9 weeks to do this. Xx

GrannyA
Posted by

I’m glad you finally got a response. Is it a hysterectomy or a hysteroscopy that you’ve to have? Either way you’ll get lots of tips on here. Xx

GrannyA
MidsomerMadness
Posted by

 I hope the wait for the biopsy result for polyp won’t take as long as you’ve waited this time....I’m 10 days post hysteroscopy and have heard nothing yet...all I’ve done this year is wait it seems 

Little lamb
Posted by

It is annoying it has taken so long and you have had such an anxious wait but at least you have the results now and treatment can begin. I can sympathise in a way as I had my first hysteroscopy in December then I was told they couldn't access the womb as they couldn't see my cervix and it would be too uncomfortable for me so I then had to wait for it to be done under general anaesthetic. That was another four weeks when they were supposed to take a biopsy but five weeks later when I had syched myself up for the results i went to the appointment to be told they only removed neurotic material and hadn't dug deep enough to get a good sample and they needed to do another one under anaesthetic again! I was absolutely gutted and I can't tell you what was going through my mind..incompetence and stupidity about sums it up but in not such polite terms. In the end I asked them to take it all away as I didn't need it any more but because I have a high bmi and am high risk due to other problems and that posed a problem in itself. Anyway I have had surgery now, they did it despite no beds being available so my ward was the recovery room for three days. My health authority is in West London. They run the cancer services over three different hospitals so I never know until I'm advised which one in going to. The hospitals are always so busy, our NHS is struggling but the staff are always pleasant and coping in very difficult circumstances. Despite the difficulties presented by no beds being available and there were four of us in that position, no visitors being allowed due to the surroundings, and only being allowed what you could fit in a carrier bag due to space restrictions and pretty much no privacy(mixed sexes) i am grateful that they did the surgery as it turned  out i did have cancer. Sorry I've gone on a bit with this post but I am pleased you now have your results and your journey can continue and hopefully they will remove the polyp with the hysteroscopy and it will be benign. God bless army. Thoughts and prayers are with you as you wait for the appointment.xx

Army
Posted by

Ah thank you and sorry to hear about your wait too. It's just not great that lives are held in balance on waiting games. I truly hope I get an appointment quickly as can't imagine this long wait again x

Little lamb
Posted by

I totally agree with you and I hope the appointment follows quickly as I'm sure it will. It's just a shame that our wonderful NHS has been eroded over time and they cannot deal with all the people that need help on the limited resources they have. Still we should be grateful that it is still here for us and for the  wonderful,dedicated people that look after us. Take care.x

MidsomerMadness
Posted by

Ok, I’m getting a bit stressed again now.  2 weeks since my hysteroscopy and polyps (3) removed.  My last correspondence was from the  Cancer System and MDT Co-ordinater.  My first polyp was benign and I was dealing with the general Gynaecology dept admin team but now it seems it’s this MDT co-ordinator (that’s who contacted me to arrange the Hysteroscopy and removal of polyps) Do all suspected cancer cases get dealt with by the MDT? I’m just wondering why the change? I’ve emailed today to tell them that I’m going away next week (again!) because I don’t want an appointment coming through for when I’m away and asking if any appointment is in the pipeline, hoping they will let me know.

Little lamb
Posted by

From my knowledge,and I add that I'm not a medic, everything goes to the mdt for general discussion and proposed treatment. They are a team of people made up of your consultant,surgeons,anaesthetists, senior doctors,etc and they look at the procedures they have done along with your medical history,scans and results to discuss the best course of treatment for you and any added precautions they may need to take.  For instance in my case,because I am high risk and have had abdominal surgery before they needed to decide whether I needed to be operated on in the cancer centre because our hospitals are graded as to whether they can operate on you depending on how many points you score. Because of my previous surgery they needed to evaluate whether they needed just a gynaecology surgeon or one specialised in bowel surgery as well because there may be adhesions where things had got stuck together during the original hea!ing process.Also because I had recently had the hysteroscopy under general anaesthetic whether my body was able to take a major operation under further general anaesthetic or whether they needed to do it in a different way of wait for a bit. It all sounds scary and official but really it isnt. It's just everybody coming together to put everything on the table to benefit you and do what's best for you taking into account your wishes and worries. What they then decide collectively is best for you will then be conveyed to you by your consultant who will go through everything with you and settle your nerves. Ask any questions you want and write them down or take someone with you because if you do need treatment it will be a lot to take in and your brain may shut down and it's handy to have another person there to be extra ears, notetaker,ask questions you may not have thought of. On the other hand however the polyps may all be benign and as others have found it may be good news and no treatment is needed which I hope it is for you. Waiting is always horrible and an anxious time but worrying and fretting about it will just exhaust you and make you feel ill..it won't change anything either..it will be what it will be. Here's hoping your next appointment won't be too far away. Keep yourself busy, think of your holiday and the lovely time you will have there and above all try not to worry. Thoughts and prayers are with you for a good outcome. God bless you.x

Stargazy
Posted by

Hi,Galanthophile,I am having a scan tomorrow at the Q.E for suspect recurrence, I was grade 1a but the more aggressive Serous type.Can I ask how long you have waited for results? X

  1. Stargazy
Stargazy
Posted by

Hi Galanthophile,I am having a scan tomorrow at the Q.E for possible recurrence, I was grade 1a but the more aggressive Serous type 2.Hysterectomy Dec.2017.

Can I ask how long you have waited for results? X

  1. Stargazy
Galanthophile
Posted by

I had my scan on 10 May. I haven’t had a formal letter yet but I did ring my specialist nurse on 12 June and she told me informally that it was ok. I’m still having a lot of abdominal pain even now. She did tell me that they were 600 letters behind. I just got a letter the other day about my consultation in April so it seems it’s the admin side that is slow. Hope yours goes ok and you get good news! X

Stargazy
Posted by

Thank you,had a scan in March for an unrelated matter,they told me my pelvis was clear.Hoping this is just a blip.

The team at the Q.E have been super,couldn't find fault through both me and my husband's cancer treatments.

  1. Stargazy
MidsomerMadness
Posted by

now checking to see if you’ve got your appointment date yet? I’ve heard nothing about my biopsy results, I’ve chased but had no reply to my email either...

Army
Posted by

No not heard seemingly bi should be receiving va letter tomorrow according to drs. Thought it would be here today. 

I know it's easier said but try not worry about results if your first ones came benign is be more thinking these will too. But until it's in writing you can never rest. 

Just wish the wait was a bit more easier and results come through quicker then they do. 

Xx