Post Menopausal Bleeding - Suspected Endometrial Cancer

Hello

I am besides myself with worry.  I had an episode of PMB back in January, just a pinky discharge when I wiped.  Rang to make GP appointment and they sent me to see the nurse practitioner.  She had a look, took a swab, thought it was trush so prescribed medication for that.  The treatment seemed to work and I thought nothing more of it

Fast forward to March and it happened again, made appointment with female GP, who tried to do an examination but was not very gentle and it hurt, three attempts with different sized implements and she gave up, said she’d refer me for scans and to see gynaecologist.  Said I should hear within 2 weeks,  Scan appointment came for 2 weeks time and hospital appointment for 3.5 weeks time.  My husband by coincidence also had a scan booked the week before mine so we swapped.  External and internal ultrasound done and sonographer said everything looked fine apart from a slightly thickened womb lining but nothing else flagged up.  This helped put my mind at risk, got home to find my hospital appointment had been cancelled because my BMI was over 40 (private hospital doing NHS work) surgery remade me an appointment at main NHS hospital but it was another 1.5 weeks after the original one. Surgery said GP had reviewed scan and that it came back green and not red so just to attend appointment at hospital.

in the interim I found plenty of evidence which shows I should have been referred under the 2 week fast track, I’m 55, I’m overweight, I’ve PCOS and I’ve never had any children..all put me at higher risk of endometrial cancer.

i rang hospital and spoke to consultant’s Secretary so said my appointment was for general gynea clinic and if my womb lining was thickened he would more than likely refer me to hysteroscopy clinic which would take another 3 weeks for appointment.

as I have still to see consultant (appointment was for this coming Wednesday) I went back to my surgery and said it was not really acceptable that I’d been kept waiting so long and would now have a further wait.  Anyway they’ve now referred me as 2 week fast track and hospital rang on Friday to say they are cancelling my appointment on Wednesday and will contact me on Monday with an appointment, my file at that time was with the consultant..

i suspect by the time I actually see anyone it will be 6 weeks since my GP appointment (not forgetting they should have referred me in January).

I googled and googled and everything came up as stacked against me, last week the pink discharge returned and I just know they are going to find something horrible.

as my GP couldn’t do an internal examination I’m suspecting a hysteroscopy with just a local anaesthetic probably won’t be achieved although appreciate they do these things all the time and will hopefully be better experience than others my clumsy GP.

We are due to go on holiday in just over 4 weeks, my insurance company have said they will cover me even though it’s an undiagnosed condition so that’s one positive...but I’m still thinking we will have to cancel if my fears are confirmed, although it’s quite possible that test biopsy results might not even be back by then.

all I do is think about what is to come, I’m scared and upset and no amount of people telling me it probably won’t be anything to worry about I just can’t stop worrying.

  • hi Midsomer, its great news that you have your appointment. Try to enjoy Easter and not to worry too much about the procedure the following Friday. I've got my money on your result being clear of cancer. If not we will be here to support you. Whatever happens you will feel better once you have answers, I can promise you that. All of us here can vouch for the waiting for results being the absolute pits. If you can, the best thing is to keep busy and do things you enjoy whilst you wait. Xxx

  • I appreciate the time people have taken to try and calm my nerves with their kind posts.  I admit I’m really scared but hoping that by having a chat with the consultant and knowing the biopsy will be out the way (bit worried about that as never had children and have read it’s easier if you have) at least something constructive is happening.

    i will update when I have more news.

  • I personally think it's more to do with the skill of your nurse than whatever is going on with your body. I've never had kids and I had no issues with my hysteroscopy at all. Just take the paracetamol and ibuprofen an hour before your appointment time, and I know it's MUCH easier said than done, but you must relax while they are inserting everything and looking around. Tense muscles make it harder for them to work, and makes it more painful for you. So whatever you need to do to relax just about everything you can from your chest to your thighs, do it.

    Also, I just want you to be prepared, you might not see a consultant at your hysteroscopy. Mine have all been done by a specialist nurse because it's a hysteroscopy clinic and not a general gynae clinic. It's a separate appointment to see a consultant. Your hospital may be different, but I just wanted to give you the heads up in case yours is like mine.

    Lass

    XX

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • The nice man who has been keeping to get me my appointment said I would see the consultant first and then the examination/procedure, I have no idea if the consultant is doing the procedure or a nurse (hoping it’s the latter if I’m truthful but why I worry about that I have no idea as these things are like baking a cake to gynaecologists are they!) as long as they aren’t as heavy handed as the female GP was when she was trying to get a look then I will be happy...if I’d have been a youngster having an internal examination for the first time I’d never have gone back.

  • HI ,

    I do hope it all goes well for you.  I was really apprehensive before my hysteroscopy .  I had seen the Gynaecologist some weeks before and she had tried to do a pipelle biopsy but was unable to enter the cervix.  I was well past menopause and It was 50 years since I had my children so I felt my cervix was probably pretty well shut!   I made the mistake of reading some accounts of the procedure and was terrified.   I confided my fears to a friendly female GP and she assured me that they would use a local anaesthetic and would be able to ease the entry of the camera.  It turned out she was right.  I only took paracetamol beforehand and I realise now that I should have used ibuprofen as well but even so it was largely a matter of discomfort rather than pain. it was carried out by the Gynae Consultant ( a woman)  I had seen previously and she was very considerate and gentle.  At one point I did somewhat wince and she said that she had got all everything  she needed and was taking the camera out.

    I had no pain afterwards and very little bleeding.

    I do hope you get good news afterwards .  In my case the consultant said at the time that it did look like cancer but she reassured me that womb cancer is usually easily treated.   So here I am 4 years later, well and active,  even though I am now over 80 years old..   In fact I seem to have fewer limitations due to my  health than my friends who have not had cancer!

    XXXX

    Anne

    (Class of 2015!)

  • Hospital have just rang to offer me a cancellation next Wednesday, so a couple of days less to wait and at a much better time of 9am.

    I’m very grateful to the nice chap whose been helping me get an appointment.

  • I am glad to hear that , we all know that the waiting is the worse thing, waiting for tests, scans and results are just so scary. I hope it goes well for you next Wednesday and I hope for good news for you too. Fingers crossed.

      GBear Xxxx 

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  • Believe me I know how you feel. I went to my GP after 2 days of PMB with no idea that it could be cancer, it was only when she said she’d refer me to “the cancer clinic” that I started to feel some alarm. But I was post menopausal, hadn’t had children and was overweight. The biopsy was the worst part (they couldn’t get through the cervix so I had gas and air and some injections internally). Of course the waiting is agony but when I saw the consultant I was prepared for it to be cancer. I was seen and diagnosed within two weeks. He said womb cancer was the easiest one to deal with. Four months on and I am cancer free and on the road to recovery. It’s not a death sentence. You just need to take one step at a time. You will get through it. Wishing you the best outcome x

  • Still spending all my time worrying, trying so hard to think nice thoughts but it’s not working.  I still have this intermittent pinky discharge and Wednesday’s appointment is playing on my mind...

  • Hi midsomer,

    The relaxation/ meditation videos on you tube are quite good to distract your mind whilst you wait, either that or keep yourself so busy you have no time to think. take it in small chunks, Wednesday is the main goal but try and pass a day at a time. Someone wise once said, a lot better than I'm about to, that worrying has no benefit, it's not going to change the outcome, it's just going to change how you feel whilst you wait. Whilst you can't control the outcome you can control how you feel and cope so you can try and change or reduce the worry. Realising that really helps me, I can put worry off to the side a bit now rather than be consumed by it, I do know that it's really tough to do though, so keep trying and keep chatting here too, we have all felt the same way.

    Lots of love 

    xxx