Uterine carcinoma Hysterectomy in 4 days

I’m having surgery in 4 days. Carcinoma was indentured after a hysteroscooy initially identified Fibroids causing the bleeding. The bleeding has stopped 3 weeks ago, the CT scan report said the cancer hadn’t spread outside the uterus that was 3 weeks ago. Can’t wait for surgery, very nervous about histology report but trying to stay positive. 
so many ladies are saying how surreal the diagnosis feels I can identify with that - it feels like there’s an alien inside me - reproducing  I’m single but have some good friends to support me, but sometimes when I think about this diagnosis it’s overwhelming. 
I was diagnosed 15 years ago with BRCA1 gene , so had my ovaries removed and regular mammograms and MRI scans so this rare aggressive cancer diagnosis - not linked to the BRCA1 gene has completely floored me. 
I was told my the first surgeon who did the hysteroscopy that the cells were stage 3 - but no one has mentioned that since including the surgeon performing the hysterectomy. 
so very scared and overwhelmed at times. How are other ladies coping? 

  • Hi Zue,

    I totally relate to your feelings. I too am having surgery in 4 days, following cancer diagnosis. The feelings we are experiencing seem to be very identifiable to this diagnosis, very surreal, and a lot to take in within a short space of time.

    I don’t have the diagnosis of the BRCA1 , although my mum had breast cancer when she was very young, my dad has bladder cancer, so the dreaded ‘word’ has lingered in my family for many years. Every morning I am overwhelmed by the massive tidal wave of fear I feel, and this is I’m sure how you feel too. Like my husband said yesterday, the best treatments are now available to us, we are on the moving conveyor belt, and although it is scary, terrifying, we have to get through these next few weeks knowing this treatment and surgery can cure us once and for all.- easy for an outsider looking in to say! I totally agree! I gathered myself to pack my bag yesterday, it was like acceptance that this is actually happening to me, my covid nhs pcr test arrived, and has a part missing, which has sent me off in another panic as I should be doing it tomorrow at 7am, so have to speak to the secretary at hospital in the morning, every little thing I overthink! I don’t think the self isolation is doing my head much good to be honest, normally I would spend time with my daughters, and I miss them so much. I’m here should you need to speak Zue, take care, sending lots of love and calm hugs! Love Emm xx

  • Hi and welcome to our corner of the Online Community. We can all identify with the surreal feeling after being told you have cancer. I was post menopause, in good health and didn't have a clue a few pink mucous like spots on my undies meant I had a aggressive hitchhiker on board!

    It's great that you've a good circle of friends to support you and by joining this group you'll be able to connect with ladies who know where you're coming from as we've all been there too. Unless you've had a diagnosis of cancer people don't really understand what goes through your head.

    My histology after the op revealed I was stage 1B grade 3. My CNS described them as angry looking. I had just 3 sessions of Brachytherapy (high dose internal radiation therapy)  6 weeks after the op a few days apart. Hopefully that nuked any lingering hikers.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

    If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

    It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

    Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

    You might also find this link to what to take in my overnight bag useful for when you have surgery.

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

    There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

    Sending you welcoming hugs, B xx 

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