Awaiting MRI results anxiety

Hello, 

After a year of really heavy periods and light spotting between periods I was diagnosed with grade 1 Endometrial Cancer two weeks ago after a Hysteroscopy and biopsy. My smear test was clear.  I had an MRI scan on Wednesday to see if it has spread. I am absolutely terrified that the cancer will have spread. I tried my best to enjoy Christmas but it was so difficult to ignore the constant sick feeling in the pit of my  stomach. Over the last couple of days I have started to get a cystitis feeling when I go to the toilet and have now got a cough (negative covid test) this only adds to my worries that it could have spread. I did however feel quite well before my diagnosis other than my terrible periods. I am 37 and have no children. Did anyone else have the same anxieties when waiting for results or similar symptoms? I don’t know why I find it so hard to think positively. I should find out my results next week after my consultant has the MDT meeting. 

  • Hi i also had endometrial cancer diagnosed the 2nd of November had hysterectomy on the 30th of November I was grade 2 stage 1a surgery was all I needed. My ovaries was kept as I am only 31 the time wating between diagnosis and surgey was awful my anxiety was so bad imagining it to be every were all over my body even now av had the all clear I notice every pain in my body. Just take one day at a time get lots of advice from ur cns mine was brilliant even now. I wish u all the best x

  • Hi  I was diagnosed late November with stage 1 and had my total hysterectomy 15th December.  I have had what was thought to be acid reflux GERD for months and have had a gastroscopy which ruled that out.  I have a constant burning in my throat, get out of breath easily and a cough.  Both my endoscopist and GP have told me this is anxiety as stress puts a great strain on your hormones, muscles and nerves.  Like you I have been panicking its spread to my lungs but need to remember my C125 was clear which indicates cancer in other areas and my CT of my chest, abdomen and pelvid was clear as was my exam from my GP.  You can think yourself into real symptoms for sure.  I have found the app pumpkin meditation a god send and lots of breathing exercises.  I also think while I'm waiting for my womb histology that whatever they are I cant change them.  Wishing you all the best for your results and keep us updated please. X

  • Hello Bella H

    It's impossible to think positively if you've been hit with a cancer diagnosis. If you read the posts for all the ladies of this forum, we all agree, that hardest thing is the waiting between tests and results and worrying - what's happening in the meantime. 

    That's it's happened at this time of the year in the middle of a global pandemic doesn't make it easier. Everything unusual flags up as another suspicion it's spreading. So easy to say, harder to do, take a deep breath and calm down. If you've been diagnosed with grade 1 it's contained within the womb. You write you have no children, take a moment to update your profile, then we'll know a bit more about you and may be offer advice more in keeping with your situation.

    Sending you reassuring hugs, take take, Barb xxHugging

  • Thank you so much. It settles my mind to know I’m not alone with my anxieties and that it’s normal. Hopefully I will know by this time next week what stage I am at. I wish you all the best with your recovery xxxx

  • Thank you so much for your reply. I have the exact same symptoms and also putting it down to Acid. I do think like you it must be stress and anxiety. They have not offered me a chest x ray or that C125 blood test (unless they have done that without me knowing, they did take bloods to check kidneys). All I have had is an MRI which I’m waiting for the results from. Thank you for recommending the app, I will download it and give it a try. I really hope they are quick getting back to you with your histology results and wish you well with your recovery. Xxx

  • Thank you so much. I will update my profile. I can’t begin to tell you how much it helps being able to talk to people going through the same thing and have the same anxieties. Hopefully I should know my results by this time next week. Xxxx

  • Fingers crossed for you the wating I found the hardest part I wasn’t even Sick before my diagnosis found due to bleeding heavy but afterwards I had sore throat difficulties breathing hot flushes it was all anxiety x