Hi all, I have posted before about being diagnosed with vin and being booked in for surgery.
My surgery was last Monday.
When I saw the gynaecologist pre op I asked him what type of vin it was as I had not asked previously.
He said vin 3. So moving on I had surgery to remove the affected area under epidural which was quite a large area on right side, near labia minora and fauchett (still learning these names) so more internal than external.
I wasn't stitched. I am advised it was some kind of "skinning"?
So here I am almost a week later with an extremely raw and sore tuppence.
I am seriously suffering
The main problems I could do with advice on are the itching, the soreness (especially when I wee)
And the bleeding.
The bleeding was not bad at first, the kind of spotting you would expect from a deep graze.
Now it is worse, I am trying to go naked as much as poss to get air to it and help it dry but I can constantly feel blood and/or watery brown discharge running out.
I use a sitz bath to pee in sometimes to wear the pain and there is always lots of blood in it when I finish.
Because its raw I am not wanting to wear pads as I don't want them sticking to it.
Is the bleeding normal? I'm not even sure if it is from the wound or if it is from inside. My periods had stopped over 18 months ago (menopause ) I am 50 years old living in Leeds UK.
If anyone has any advice I would be very grateful. Thanks for reading x
I'm sorry to hear how much discomfort you're in and that you're worried about the bleeding that you're experiencing. Unfortunately, I can't help with any of your questions but I noticed that your post hadn't had any replies yet.
Have you spoken to your hospital team about what is happening? If not you could give them a call and talk it through. Alternatively you could post your questions in the ask a nurse section of the online community and one of the specialist nurses will aim to reply in two working days.
I hope you start to feel more comfortable really soon.
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Hi Latchbrook thank you for your reply.
I have spoken to a nurse and my gp.
Unfortunately bleeding after the menopause is not a good thing apparently so I have been referred back to the gynaecologist on a fast track referral
Should hopefully be see within 1 weeks
Hopefully I will get some answers then.
It's all a bit crazy. But I know people have much worse.
Edit * hopefully been seen within 2 weeks. Typo
Sorry to hear that you're being fast tracked back to the gynaecologist Joanx but at least you'll be seen quickly and hopefully there's nothing amiss.
Do come back and let us all know how you get on.
By the way, if you need to edit a post just click on the 'more' button and then the 'edit' button.
Thank you Latchbrook
I have LS, lichen sclerosis which caused my dVIN 3 I had a WLE but then histology came back as cancer, so had a hemivulvectomy and lymph node removal. Glad you are being fast tracked. I use a spray bottle when I pee, dry using cool hair dryer and go commando as much as poss. I never bath and avoid getting shampoo or any other products on my vulva. not sure if that’s helpful but good luck
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