I am scared and have so any questions, can anyone help?
I'm so sorry you are in this situation. I had half my vulva removed and skin-grafted at the end of January. I will try to answer any questions you have, but everyone’s experience is different. There are a few of us on here who have been through it.
im travelling today so may not be online much, but will chat when I can.
please try not to be scared - you will get through this x
Yiyah, I'm sorry you are facing surgery with your vulva cancer diagnosis and you have every right to be scared; it's a scary thing. I'm hoping you have a supportive family and/or friends that will be able to help you after your surgery. If you could write down all of your questions to ask your doctors and/or us that may give you some comfort. Like Sara said, there are some of us who unfortunately are veterans of this horrid disease and there are no dumb questions - this is something new for so many people because although there may be a lot of us on this site, it is still very rare compared to other cancers.
I don't know when your surgery will be but I do have a "tip" list that I typed up because I've been asked so many times so it made sense for me to save it on my computer. LOL One thing to remember though, is we are all different cases, we may have similarities and can share our experiences but we all have doctors who may decide to treat the patient differently, we have different pain tolerance, healing process, etc. BUT one thing we do agree on is supporting each other, being here for you to cry, vent, share happy news, and gain experience, tips and knowledge.
We are here for you. You let me know when you are ready to ready or if you choose not to see my 'tips' list. Are your doctors talking about lymph node removal too or wide local excision, partial vulvectomy or radical vulvectomy?
Thinking of you,
Lisa from USA Michigan
Yiyah, are you feeling any better? I am going to paste my 'Tips' document into this email. You may not need all of these because it depends on what they will be doing for you. Always remember though these are my tips and what's worked for me so you may want to ask or show your doctor or nurse if you have any questions about it. I know many ladies have said in the UK their doctors do not like a sitz bath but here in the US they recommend we use it three times a day. I hope this helps you; I wished someone would have told me all of these things before my surgeries started so now I do it to help never to scare anyone....if you have any questions, please don't hesitate to ask any of us. Thinking of you.Lisa
Lisa's Tips After WLE or Partial Vulvectomy:
Drainage Tubes Tips after Lymphnode removal:
In Dwelling Catheter Tips:
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: