Vulva cancer

Affected by VIN (a pre-cancerous condition) or vulva cancer? Join this group to share experiences and ask questions to people who understand what you're going through.

vin op

Penloc
Posted by

I posted a few weeks ago while waiting for biopsy results.  Came back with

2/3 VIN,  I had the op for removal yesterday and came home last night.  A bit sore (?very sore), but sitting on my new comfort ring covered by cloth thingy supplied by hospital.  Hope this is it.  the skin was swnt for biopsy to make sure all removed and confirmation of diagnosis.  

In the op itself the only glitch was anaesthetic,I was supposed to have a spinal block but  it proved impossible to find the spot and a nerve hit and leg still aches. So had to have had to go for full anaesthetic.

It has been a bit of a roller coaster, but thankfully all proceeded quickly.

Good luck for every one else out there

Judith

Penloc
Penloc
Posted by

I am now 6 days post op.  Still painful but am still bleeding quite bably.  I take blood thinners for another problem.. Has anyone any advice- eg how long before I go to GP, how long does bleeding last. Judith

Penloc
Penloc
Posted by

Update, wound is still bleeding badly.  The nurse I spoke to on this site was fantastic and I now have an appointment with the consultant tomorrow to be assessed.  Wish me luck

Judith

Penloc
LauraKR
Posted by

Hi Judith

Hope you get on well tomorrow and they are able to sort things.

I had a vulvectomy in March and had several biopsies before that. Do you get any support from macmillan  through your hospital? I found them so helpful and they’re my go to for any concerns at all.

I had quite a lot of bleeding too following my surgeries and was given some oral antibiotics for a bit of an infection and it all stopped fairly quickly after that so I’ll keep my fingers crossed for you too :) 

Laura 

Penloc
Posted by

Thanks Laura, that is very helpful and hopeful.  I have not really had much support from hospital - but they are responding quickly.

Judith

Penloc
LauraKR
Posted by

It’s good you’ve been able to get an appointment. Hopefully you will start to feel much better after that. 

I must be lucky then as I was assigned a Macmillan nurse at the hospital and they’re almost like a key worker for me so follow up on anything needed and are always there for me to call and speak to.

its good that you’ve been able to speak to someone from Macmillan through this though,

Penloc
Posted by

Thanks Laura

I saw Dr at hospital this am and now have antibiotics for infection.  Apparent the surgery did not get everything they wanted to and biopsy results haven't come back yet.  I am now expecting an appt in 6 weeks to discuss any possible further treatment.  Also the local MacMillan nurse rang me today so the support is there. 

Hope all is well with you.

Judith

Penloc
LauraKR
Posted by

Hopefully the antibiotics will kick in then-sounds like we have had some similar experiences. You’ll start to feel so much better I bet if your body has been trying to fight off an infection all that time. 

Hope they do the trick! 

Laura x

Penloc
Posted by

Hi Laura

Much better today.  The bleeding is not so bad and I feel more motivated to do things,   I reacted badly to one of the two antibiotics I was given and had to stop

Judith

Penloc
LauraKR
Posted by

Hi Judith

So glad to hear you’re feeling better - such a great feeling when you finally have a bit of motivation isn’t it. And that will come and go-make sure you take it easy though too ;) xx

elmslav
Posted by

Judith, I am so happy that your bleeding has gotten better and that you were seen and got an antibiotic. I'm glad that you have support from your nurses. Please keep us posted as to how your pathology results come out.

Sincerely,

Lisa

Lisa from USA Michigan

Penloc
Posted by

Hi every one - I am feeling better, bleeding id much,much less.   

I might add I was given two antibiotics.  I had to stop one after 24 hours as I reacted to it (swollen back of tongue and blisters on roof of mouth).  So I am keeping watch and hoping the one I was able to take did the job.

Next appt 29th

Judith

Penloc
Penloc
Posted by

Hi everyone

well it 4 weeks since op tomorrow.  One side has healed nicely now but the other is still bleeding a bit a clots on it.  I was hoping the antibiotics would heal this.  

Does anyone know how to tell if there is an infection?  I would have not known last time, it just looked raw to me

Thanks for the help and support

Judith

Penloc
LauraKR
Posted by

Hi Judith

Do you have a macmillan nurse or a contact at the hospital you could call?

when I had continued bleeding they asked a few questions (such as if there was a smell to the blood/discharge) and about amounts etc so they might be able to advise?

i always think that if you’re worrying about it or even if it’s just on your mind then it’s always worth getting things checked out, even if just to put your mind at rest. 

Have you been more active recently which may have caused the bleeding maybe? Laura x

Sparkle.1
Posted by

Hi Penloc

i had a Wide Local Incision & Diathermy on 16/1/2019 for VIN3 i knew straight away i had a infection with the Discharge & Foul Smell & kept feeling so Hot.   Just had 2nd surgery on 3/7/2019 sane again but worse.   Just completed a Week of Antibiotics back to the hospital today & given 2 more Weeks of Antibiotics.  

Please get intouch with your GP or Hospital if your concerned.  Hope you get it sorted Dont Leave it!  

Love 

Sparkle.1.    ( Paula )

With Love