EC Advice needed for infusion

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Hi everyone!

I need some advice, as I really don't know what to do here Disappointed

So I had my final Paclitaxel infusion yesterday which was hard going as my veins have now become very difficult to get to and a couple times there was no 'backflow' so I got stuck with a needle about 3/4 times yesterday Sob but anyway that takes a way a little from the point of this post. The nurse I had yesterday has put an email over to the schedulers to get me a PIQQ (or however it's spelt) line, the reason I didn't have 1 at the beginning is due to me having cats the doctor said it wouldn't be a good idea due to the part that hangs down, the same reason they don't suggest it with children around. I did have a call a few weeks about about the implanted port thing and the lady said there was no point me having that as I don't have much treatment left and it's about a months recovery both beginning and end. She also said due to me being halfway through treatment she wasn't too comfortable. 

Sorry rambled a little there. Going back to yesterday's convo, the nurse has said that because of my hands issue they can't see/use the veins in my hands anymore, which is fine by me cos they are sore as heck when they do use them. She said that if I end up in her section without a line she won't give me the treatment due to the risk to my veins. She has said that with EC treatment specifically the red one that it can really damage my veins with just a cannula. She had managed to get another nurse to me yesterday who did manage to get the cannula in albeit using my hand. This was also the 1st cannula insertion that made me cry as it was super duper painful, this nurse also said about getting the PIQQ line, I have 4 infusions in total left all on the EC treatment plan.

So what I want to know is, has anyone else been on EC and had just the Cannula? Or would it be best to listen to both of these nurses they are the only 2 that have said to me about the dangers of EC. I really don't know what to do here, I'm going to wait for the scheduler to call anyway. I'm conflicted in myself as I really don't want to go through the pain I had yesterday ever again for a needle (I was in that much pain my boyfriend cried seeing it) and the nurses comments are making me go PIQQ,  but then I'm like I've had this many without anyone saying at the beginning about any of these EC risks and just putting the cannula in with no issues. 

So, if anyone has any advice/personal experiences that they've been through please can you help a girl out to figure her choices. This is all making me want to cry and give up right now. 

  • Why not chase the PICC line people or contact your BCN.  Explain that you want the situation resolved.  It never hurts to be proactive.  

    All the best 

    ricki
  • Yeah I have asked and it's being chased up. But from my understanding there is only 1 person who deals with the requests so it can take a while. It took a while when they wanted me to talk to her about the port which she said she wasn't happy to do cos of the healing time and how long is left.

    Hopefully I'll get something soon!

  • I hope you do. The waiting is always the worst part I think.  

    Best wishes 

    ricki
  • I start EC on Monday and already have a PICC line in ( have had 4 cycles of carbuplatin and Paxcitaxil already through it)

    The entry point of the line and the bit which holds it in place are covered with a clear dressing and the dangly bit is wrapped in gauze and then taped up onto the arm and the whole dressing is covered by tubigrip. I have a pet rabbit which as my PICC ine is completely covered i am able to hold cautiously.

    I must admit im not looking forward to the EC but thats not due to the PICC line just the fact i've heard its brutal.