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Thyroid cancer

A place for people affected by thyroid cancer to support one another, ask questions, and share their experiences.

Thyroid cancer and work

sarah_83
Posted by

Hi I found out I had thyroid cancer after a TT, I've been signed off since. I wanted to tell my manager about the cancer just so he would understand that my recovery would be a bit longer. 

I noticed on here that if you have cancer you are protected by the Equality Act, my fit note only states thyroidectomy not thyroid cancer. Should I get my GP to put thyroid cancer on it or does my employer just take my word for it? Im back in work next week and don't really want any special treatment but have warned my manager I might get tired quicker and might need some extra breaks.

JC13
Posted by

Hi Sarah_83

I had a TT in March and was diagnosed with papillary thyroid cancer. I am retired but I found a good way to explain everything to my family was to show them the really informative Macmillan Thyroid Cancer booklet, hopefully your employer will take the time to read through it about your operation and the after effects and counter in some extra breaks for you.

I find that by late afternoon if I sit down I quite easily drop off for a quick snooze which refreshes me for the evening ahead.

i am waiting to have radio iodine treatment which is delayed due to coronavirus.

Good luck with your return to work.

Jan

Jan
sarah_83
Posted by

Thanks Jan will have a look at the booklet. 

Im waiting to find out if I need RAI, my cancer hasn’t spread to lymph nodes but did break through the thyroid capsule into the Perithyroidal tissue so I think I will probably need it. Did you know you had cancer before tt?

Do you know when your rai will be?

JC13
Posted by

Hi Sarah

i had been diagnosed after my FNA but before my TT, after that was taken out it was found in a few lymph nodes so RAI needed. I do not have a date yet but hopefully in the next few months would be good if it is safe. My cancer care nurse gave me the booklet on my diagnosis but the British Thyroid association has detailed guidance on the operation and aftercare.

Stay safe

Jan
sarah_83
Posted by

Whats a cancer care nurse? The only person I’ve dealt with since my diagnosis is my surgeon.

JC13
Posted by

Hi

sorry they are called Head & Neck Support Team Nurse Specialist Team, its like a key worker you can call for support or information throughout your treatment

Jan
Runner25
Posted by

Every hospital operates differently. I was treated last year and had a TT and RAI. I saw a surgeon and a consultant from nuclear medicine, if I had any questions I can email nuclear medicine. I think it depends on the size of the hospital.

sarah_83
Posted by

Im dealing with 4 different hospitals, I have my endo in my local hospital, then surgeon in a hospital 60 miles away, thyroid cancer specialist 120 miles away and an endo who is deciding if I need RAI in another hospital 90 miles away, so I don't really have a set hospital.