Thyroid cancer

A place for people affected by thyroid cancer to support one another, ask questions, and share their experiences.

New results, looks like it's going in the right direction?

Lynchmill
Posted by

Hi peeps 

Just got my results in from my latest blood test. I've had some significantly raised readings in the past, and I'm now booked in fir my second blast of RAI in late march. It appears to be heading in the right direction.....


Here's the numbers

Tsh 0.54 mu/L December was 16.6


Tg 14.1 ug/L November was 90


Anti Tg 12 was 20 last recorded


Free T4 22.6 (H)pmol/L was 11.2 in December 


Anyone cast an eye over this?


Thanks


Guy

barbaral
Posted by

Hi  

Looking good and definitely heading in the right direction. I would expect the docs to increase your dose a bit further to try to get you down to around 0.1 on TSH but the challenge (and I have the same) is not to let the FT4 run away with you.

The difference in the TgAB readings is probably not significant - both are good and low enough to not interfere with your Tg results and that's a fantastic drop on the Tg, especially if the December one was not 'stimulated' (do you know? was it done directly before your RAI?)

Let's see if that second RAI can finish what the first one started.

Great progress.

Best wishes

Barbara

“Scars are tattoos with better stories.” – Anonymous

Lynchmill
Posted by

Latest result

Tsh 0.31

T4 15.8

T3 5.3

:-)


I have my second round of zapping booked in for late march, 5500mbq this time, so no contact with my very huggy son for 12 days

barbaral
Posted by

Hello again,

How long elapsed between those two sets of results, please?

The new ones are probably better but with you posting them only a short time apart, it's hard to know what they mean.


Did you change dose and if so how long were you on the new one?


The changes look good (still a bit further to go on the TSH perhaps, depending on the above questions) but the really odd thing is your FT4 went down as your TSH dropped. Usually they go in opposite directions.


Did you make any other changes? For example taking supplements, a big weight change, or taking some other medication?

Best wishes

Barbara

“Scars are tattoos with better stories.” – Anonymous

Lynchmill
Posted by

The tests are only two odd weeks apart. I haven't changed dose, gained or lost weight. I've been more careful recently about not taking my levothyroxine with anything else, which I started doing a moth or so ago.

I have another round of rai to go in march, so I know I'm not clear, it's met'd to my lungs and chest, but not bones yet. 


I received the blood test sample bag in the post. No explanation. No covering letter. Bit weird. So I just asked my surgery to take the test. It was sent to Taunton, but my oncologist is Exeter based, as was the sample bag. Taunton can't send it to Exeter....

barbaral
Posted by

Thanks Guy, that's really helpful.

Clearly whatever you changed about how you take the tabs really did work. You're getting better impact (lower TSH) out of the same dose AND keeping your FT4 down to a level at which you've got space to increase the dose without going too high.

Oh I do love it when the 'theoretical' advice turns out to work.

In the words of Hannibal Smith (from the A Team), "I love it when a plan comes together".

Regarding your mets, obviously nobody wants to have them, but so long as the iodine is doing its magic, your future still looks very positive. Good luck for your next trip to the world's crappest spa.

Best wishes

Barbara

“Scars are tattoos with better stories.” – Anonymous

Lynchmill
Posted by

Latest tg now 10.3

Ten days till Rai #2

barbaral
Posted by

Hi Guy, 

Long may this continue.

Best wishes

Barbara

“Scars are tattoos with better stories.” – Anonymous

Lynchmill
Posted by

Just had my results back from my latest tg test, which took a month to come back for some reason. 4.5 :-) yeah, nearly there.

But sadly my parathyroid has been totally fried, so I have no pth and thus no control over calcium levels, which mucks up the energy levels and makes me a moody sod.

yjoany
Posted by

Hi Guy

Glad to see your Tg is going going..........next time hopefully gone....

sorry about parathyroids giving up.. that's a pain to have to control all that every day....

are you still taking Gaviscon etc for reflux? Just wondered because I've just been diagnosed with silent acid reflux and I'm sure that's what you said you had?

Hope you are good otherwise.

Jo

Lynchmill
Posted by

Thanks, yes it's a pain, have to take calcium 3 x a day sometimes 4, plus magnesium, plus vitamin D. Also trying B12 for energy.

No, I now take renitidine for the stomach, as it turns out I had a slight hiatus hernia. Don't take omapromazole as it interferes with thyroxine.

Lynchmill
Posted by

As above, my last unstimulated tg was 4. My last stimulated tg was 27 which I found out Monday.

Am I correct in thinking that stimulated should be about 5x unstimulated? In which case this about inline? The onc' was confused as he read my last report (in fact the one before the last) which showed unstimulated at 14.


I'm going in for a ct scan next on my lungs as they have been fried :( and I'm short of breath. 

Lynchmill
Posted by

Latest result for Tg is 4.2 Vs the previous one from May of 4.9 (just double checked, statement above of 4 is wrong, thats me concentrating on the first digit :)  )

Onc said there was little to nothing showing on the scan from a low level I131 dose (100MBeq iirc vs the treatment doses Ive had of 1100 and 5500).

Would a Tg of 4.2 barely show on a gamma scan? Or is mine turning into a non-avid?

yjoany
Posted by

hi Guy,

I am 'non avid' and otherwise no expert... but your Tg is going down and that's what matters I think...

My Tg was about 150 before my second lot of RAI (5500dose). The Gamma scan showed all clear but my TG had trebled.

HOpe that reassures you for now... why not ask the oncologist that very question you put here?

Good luck.

HOw's the breathing /acid reflux issue? I am having an op soon to hopefully widen the airway so I can breathe easier called a cordotomy o the vocal cord...

Jo

barbaral
Posted by

Hi Guy

I hope yjoany's figures help put your 4.2 into perspective. At that level, I wouldn't expect anything to show up on a gamma scan. Have you ever seen one of those? It makes looking for a black can on a moonless night look easy.

Tg as low as yours is not going to make a significant 'glow'. Thinking to when my friend Karen started to have rising Tg - much higher than 4 - I think she had to have a PET scan for them to be able to find anything. A set of rising Thyroglobulin results will spot recurrence LONG before any of the scans or other tests can see anything. But yours isn't rising - so please relax on that.

As for going non-avid, you have absolutely no reason to think that. The Tg is so low that even if you zapped it with a really big dose, it's not going to make you light up like a christmas tree.

Best wishes

Barbara

“Scars are tattoos with better stories.” – Anonymous