aches and pains

Hi All

Has anybody else experienced, after having both thyroids removed, aches and pains in joints and muscles, if so does it eventually go away?

I'm so tired all the time and I'm feeling down. I was on levothyroxine 125 and just over two weeks ago they put it up to 150. Having RAI in June. Seeing my nurse practitioner in the morning as I'm not sleeping at night as the pains are keeping me awake. Any advice would be appreciated.

Thanks Lily 60

  • Hello,

    Firstly, I have to point out that you never had two thyroids. There's only one thyroid but it has two lobes. 

    The pain you describe might be related to your thyroxine dose but it could also be a lack of Vitamin D. It's very typical for people to find their Vit D levels are very low and to need to take supplements.

    What you describe is how I felt a few years after thyroidectomy - bone and muscle aches. Please describe it to your GP and ask for a Vit D blood test. 

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Thanks Barbaral

    I have had blood tests in the past and it showed that I had a vit D deficiency, they put me on a course of vit D and folic acid for a couple of months and then when it had levelled up take me off it. But I will mention it tomorrow when I'm in with the nurse. Sorry I meant to say that I had both lobes removed only one side and the middle piece was cancerous left lobe was fine.

  • Have you had it tested since? I won't be at all surprised if it's low again. 

    I was very low and have been on supplementation ever since. That's several years.

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous

  • Hi Barbara from the last time I was talking to you I have been having bloods done and redone because they made a mess of the first lot but eventually got a result that I am very low on Vit D, so now on a course of medication. Hopefully I will be pain free in a few weeks. 

  • That's fantastic. It's always a good thing to know a cause and to be able to fix the problem. Thank you so much for letting me know. 

    If they try to take you off again, I would suggest to challenge that. My GP won't prescribe maintenance doses of Vit D but I buy a year's worth at a time from a certain wall known website named after a South American river (if you know what I mean). It costs me about £10 a year.

    I get my Vit D tested approximately twice a year when I have my Thyroglobulin and TFT done. 

    Best wishes

    Barbara

    “Scars are tattoos with better stories.” – Anonymous