Soft tissue sarcomas

A place for anyone affected by any type of soft tissue sarcoma to support one another, ask questions, and share experiences.

Recurrence of Soft Tissue Sarcoma after 3 years

Posted by

Hello All,

Three and a half years ago I had a below-the-knee amputation as the myxofibrosarcoma in my ankle was inoperable. It has been an amazing journey with the RNOH Satnmore where I had the surgery and everything that followed - physio and prosthetics, and I've been walking better and better with a super slim leg as my stump shrank more and more.

I knew there was always the chance of recurrence but refused to dwell on that possibility. However asfter a long investigation of a lump on the stump over the past 6 months it emerged that the lump was a recurrence of the same sarcoma.

Over the last 3 weeks I have had two further surgeries - I opted for excision of the lump as it was contained in a capsule, rather than a resection as I want to retain my perfectly good knee. Then two weeks later (that is 10 days ago now) I had a skin flap which was done at the Royal Free Hospital. They did a beautiful job and I'm sure it's going to be great when I get to start again with prosthetics. The skin flap was the recommendation rather than a graft which wouldn't be strong enough to withstand the pressures and stretching that happens when wearing a prosthetic leg.

I have to say though that while I can look ahead to a brighter future (yes i know, a further recurrence is always a possibility but I am not going there!), I am feeling a little shaky right now and in some pain. Wishing you all well XXXXXXXXXXXXXXXXXXX


Posted by

Just want to say you are amazing. You have been through so much, of course you a little shaky!! I am 3 weeks post op and feel like rubbish! You have inspired me to get up and get on with things. So thank you and give yourself a hug xxxxx