Soft tissue sarcomas

A place for anyone affected by any type of soft tissue sarcoma to support one another, ask questions, and share experiences.

Well differentiated liposarcoma in the abdomen

Esmeralda-Sue
Posted by
  1. Hi everyone. Seven weeks ago whilst having a chest scan I was told of an incidental finding of a lump in my abdomen. It turns out to be a well differentiated liposarcoma currently non malignant. I am now faced with the decision to either have surgery and lose kidney, spleen tip of pancreas and part of my bowel and loss of leg function or have surveillance scans. I am a keen runner and either run, walk, cycle or go to the gym every day. Feeling lonely is anyone else in my position. 
Sparky2
Posted by

Hello Esmeralda-Sue. What a shock you have had. Big hug to you, please try not to feel lonely. There are lots of people in similar situations, which hopefully will help. I hope there are others here who will make contact with you too. I have an abdominal liposarcoma too. It was discovered because I lost weight gradually  over about 2 years and was left with a large tummy and some pain. I haven't been given a choice, like you, I have only been told I am having surgery in about a fortnight. I assume that they are going to be taking out other bits and bobs whilst they're in there though! I'm waiting for someone to tell me the results of my biopsy last week. I might know more soon! I cant help you make your choice but hopefully it will help to vent/air your thoughts here. In the meantime, take care xx Sparky

Esmeralda-Sue
Posted by

Dear Sparky,

Thank you for your reply. So sorry to hear to hear about your situation too. It’s really tough isn’t it. I hope you aren’t in too much pain. Interestingly, I am not having a biopsy as they said it wouldn’t necessarily be accurate. I am having scan results tomorrow as initially they found it with a scan of my lungs and this scan goes into my pelvis so they can see how far the tumour goes.,Today I am keeping busy staring with a run! Good luck with your surgery.

Sparky2
Posted by

Thanks! Hope the run helped. I will be thinking of you tomorrow. Good luck! Xx

Esmeralda-Sue
Posted by

Run was great thank you. 

E-S

Lin0211
Posted by

Hi just found this group, hope you don’t mind me joining in the discussion. I had surgery on the 15th March for a well differentiated liposarcoma, which went very well. Hope that yours has too. Lin 

Sparky2
Posted by
  1. Hi. So pleased your op went well. I am still waiting for a date. My tumour is feeling very large and heavy now. Although I am terrified about my op I cant wait to get rid of this tummy! How was your recovery Lin0211?
Sparky2
Posted by

How are you?

Sparky2
Posted by

How are you?

Esmeralda-Sue
Posted by

Ok thanks and you? 

Lin0211
Posted by

Hi Esmeralda-Sue and Sparky, thanks for letting me join your conversation. Not sure how much you’d like to know, but if feel very luck that my tumour wasn’t too big and didn’t affect any of my other organs, i was in hospital for a week, and was off work for 12 weeks. I don’t feel that I’m fully recovered yet but am certainly getting there, just get a bit tired at the end of the working week but I’m sure that will get better as time goes on. If you’d like more details I’m happy to share. Hope your operation is soon, take care. 

Sparky2
Posted by

I will let you know when I get an idea of my op date. Soon I hope. It's great that your recovery has gone so well. Onwards and upwards! Just wondering if you drive? What was the advice about lifting, driving etc? Thanks for now x

Lin0211
Posted by

Hi hope you don’t have to wait too long, mine came around quite quickly, had the biopsy in Jan, was called for the op on the 1st March, which was cancelled at the last minute then had another date two weeks later on the 15th March. I went home from hospital after a week with instructions not to lift anything heavy for about 4-6 weeks and not to drive for 8 weeks, but actually left it until 10 weeks because I didn’t feel confident enough before that, however I’m fine now. I’m back at work too now, had 12 weeks off, had a fazed return for 4 weeks doing part time hours, but now back full time. Keep in touch and take care x 

Sparky2
Posted by

Well, had my pre-op assessments, anaesthetist meeting and an exercise test today. I passed all the tests with distinction apparently so am good to go. No date yet though. The lovely anaesthetist did suggest it may be 2 to 3 weeks time. Ugh! Pain, tired, night sweats!!! Fed up!!! Seriously though, I am pretty scared, in case it's worse than they thought when they get a good look and incase they have to remove lots of other bits and bob's too. I just wanna survive the op and recover well! Sorry about the rant. Hope everyone is well x

Esmeralda-Sue
Posted by

Good news about passing the pre op with flying colours. Loads and loads of luck over the next couple of weeks and beyond. Keep busy and try and do lots of things you enjoy every day before your surgery. Stay strong.