Scared - waiting for sarcoma op

morning

firstly, well done for getting this far.

How is your baby ? 5 weeks early is nothing these days, is it a boy or girl? how big ?

We do have some positive stories but I need to look for them, there was a really good reassuring message the other day, let me go and find it.

be right back

Carolyn

x

hi  

I'm going to tag Alice to attract her attention and hopefully she'll have a bit of time to stop by later and give you some reassurances.

SuperReedy 

thanks in advance

Carolyn

x

Thanks Carolyn. Reuben is doing really well he was 5,7 when he was born, which is a great weight. He went on to special care until he could feed for himself...he has made up for it and is now around 11lb. I'm not in a local hospital and really miss both my children. 

Unknown said:

14 weeks ago (whilst pregnant) I went to my GP as I'd developed a large painful swelling on my right buttock. My GP referred me to the hospital straight away. After an ultrasound I was diagnosed with a hematoma as a result of a wrongly sighted steroid injection a few weeks earlier. I was in hospital for a week before the surgeons decided what to do with me as I was pregnant. Then it was decided I would have the hematoma removed under spinal...this then triggered the birth of my baby 5 weeks early and I had an emergency c-section on the same day. After a few weeks the swelling reappeared and I couldn't walk again and had an infection . I was readmitted and subsequently had the hematoma washed out 7 more times. Each time the swelling came back. Eventually my consultant sent a biopsy to histology and this is when I got the devastating news that the lump was a sarcoma, thankfully I only have one tumour although it's very big. I am now in hospital waiting for op to have it removed on Friday I'm very anxious about the surgery and can't stop crying. I just want this thing removed so I can get on with my life but keep imagining the worst. Any positive experiences would be appreciated as this is eating me up from the inside. 

I've just picked this up just as I'm about to go out. Happy to talk later if my story is helpful. I was diagnosed with a sarcoma in January that was removed by surgery in Spril after 6 weeks of radiotherapy each day. I had ribs removed so that the sarcoma could be removed. I have been given the all clear and my life has returned to normal after five or six pretty difficult months. It's amazing how quickly your body can recover after this sort of thing. Very best of luck 

Well I had my op on Friday. Was 8 hours but they managed to remove it all. I'm recovering in hdu in Leeds. I'm also waiting to see if muscle graft has fully taken...looking good so far but am really anxious.

So pleased you have been given the all clear. I'm recovering in hdu after op to remove it, they have told me they managed to remove it all. 

That's really excellent news. Best of luck with the recovery

Well things aren't going as well as hoped. My skin graft didn't take I'm waiting to see if the muscle has taken, I'm having op today but I've just been told I've got a bug in my drain fluid so op is delayed. Always seem to get bad news, I'm at a all time low!

I'm so sorry to hear this, huge hugs, I can imagine feeling down in the dumps about this, being in hospital, having bugs in your drain fluid, not being with your baby, Reuben, such a nice name, I had an uncle Reuben.

Are the team taking care of you?

Are you allowed visitors ?  Who's looking after Reuben and other boy or girl ? ?

I sound like the Spanish Inquisition ... sorry

hugs

Carolyn