Thanks for welcoming me into your online PMP community. I've been diagnosed with PMP 4 times now and recently have been deemed palliative.
I am wanting to connect with people who may be in a similar position. Does anyone know if there is a local face to face PMP support group in Berkshire?
Hi ClaudiaI'm sorry to read that you have now been deemed palliative. As I'm sure you can appreciate, because PMP is so rare, there aren't many face to face support groups and those that there are tend to be made from connections on support groups.
Angela Pseudomyxoma peritonei survivor and trustee of Pseudomyxoma Survivor
Thanks Angela, I found out that the chemo has shrunk it by 35% recently so feeling hopeful :)
Are there any groups that anyone on here have arranged? or any informal meet ups?
I'd much rather face to face interactions over online.
I'm not aware of any, Claudia (doesn't mean there hasn't been!).
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