Hello Sallyrose,Sorry that you have to find yourself here and that your husband has been identified with a recurrence. I had my original surgery at Basingstoke in 2011 and have been on watch and wait with a recurrence for a number of years now. Those thoughts are never far from the back of my mind.If it helps, there's lots of patients who have been through a second surgery and understand how it feels.xx
Thanks for your reply pmpsurvivor,it helped. Watch & wait is a land we are very familiar with also, because he has always had recurrence from his first scan. I can sympathise with you very much so.Stay as fit as you can in your now "normal " way, & distraction techniques are always useful we have found.
Oh & we have heard that his new urgent Ct scan is for a week on Sunday ( madness !) so I'm just keeping everything crossed that Mr Cecil or Mr Mohammed can offer another surgery.
It's great that there's a plan and also to see that NHS resources are being used to the full ()
Will be thinking of you both on Sunday. Hope you don’t have to wait too long for an appointment at Basingstoke.
I am just shy of a year since my surgery so my first yearly scan will be in the next few months.
Sending you the very best and fingers crossed for you both.
Thank you so much for your good wishes Cassie . I have just gotten off the phone to my husband's surgery to ask about a prescription for "ensure" supplement drinks, because he really can't face even small meals now. I feel exhausted & have to fight for any help with his condition.Sunday can not come too soon.I am now thinking is it because we are in Wilts. health authority & Basingstoke is of course Hants. authority .Hmmm.
Don't be too apprehensive Cassie , if scanxiety sets in when you get your first scan date.Many do feel this way, it's where everything to do with your diagnosis & past treatment suddenly comes to the front of your thoughts ,whereas up till then you have been merrily getting on with your life.I'll be thinking of you & your results too .
It sounds like you’re doing a great job at advocating for your husband and I expect you’ll be there asking all the questions at his Basingstoke appointment. I’m really sorry to hear that he is struggling with food, it must be difficult for you both.
I can’t say if location has anything to do with time scales and waiting. I’m from Coventry in the Midlands. I think I waited a couple of months for my first appointment after local diagnosis and referral.
Trying not to think too much about the what ifs and scans. It’s exhausting dealing with the day to day without the stresses I could let my mind get in to. I’m waiting on an echocardiogram for a murmur the gp has just discovered. One thing at a time.
Best wishes to you both
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