Pseudomyxoma peritonei

Pseudomyxoma Peritonei is a rare cancer of the appendix. If you're suffering from PMP, or know someone who is, join this support group.

Hi

Fletch67
Posted by

Hello there.

First of all apologies if I shouldn't be on here.

I had appendix cancer and had the appendix and part of the small intestine removed.

My op was 20th October and my head is still all over the place.

My main concern is that because the cancer has been removed that I should not be speaking to cancer nurse/support as they will be busy dealing with people who still have cancer. Have been told it can come back.

Please advise me if you think I should or should not be getting support.

Thank you

GRANNY59
Posted by

Hi Fletch 67 welcome to the forum and you are in the right place for support. 

I have not heard of the type of Cancer you have had but lots of us on here have had Cancer and now dont and we are still here for support fr ourselves  and to support others so you chat away as much as you like.

Cancer support deals with a wide range of issues and many are not just about the Cancer being removed a lot of us have issues after the treatment has finished as this disease messes with your thoughts and feelings and can jump up and bite you when you least expect it.

You are most definetely welcome to access any support that you feel that you need to help you deal with what has happened for you so please feel free to have a look through some of the threads and also feel free to post in any of them if you feel that you could help others.

Please Keep in touch and let us know how you are doing .

Sending very best wishes for now. x

pmpsurvivor
Posted by

Hello Fletch67,

Welcome to the forum. There isn't a specific community here for appendix cancer but as most cases of PMP start in the appendix, I think you're in the right place. Where did you have your operation? Have you been seen by an appendix cancer specialist?

I think it's very sad that the nurses have told you that but there are lots of places to get support apart from the cancer nurses.

Regards


Angela
Trustee, Pseudomyxoma Survivor
pmpsurvivor 
Flowery
Posted by

Hiya yes you absolutely should be on here and I’ve found this forum really helpful. There are also some appendix cancer groups on Facebook which can be helpful. 

When is your next appointment/scan or follow up? I’m not completely sure as I am still receiving treatment but if you are cancer free they normally check up on things every 3 or 6 months? Other people maybe able to advise on this better.

what did your doctor advise as a follow up? 

I have just had further surgery and hipec (localised chemo wash) and go back on the 20th of this month to discuss wether I am cancer free x

Fletch67
Posted by

Thanks for your kind reply. Was readmitted yesterday after bood test showed raised inflamatio. CRT scan today and hopefully just an abscess and nothing scarier.

I really am so grateful for your reply.

Thank you

Flowery
Posted by

Good luck! Keep your chin up and make a list of questions while you are there x

pmpsurvivor
Posted by

Hope you're feeling okay, Fletch67. Fingers crossed for those CT scan results.


Angela
Trustee, Pseudomyxoma Survivor
pmpsurvivor