Pseudomyxoma peritonei

Pseudomyxoma Peritonei is a rare cancer of the appendix. If you're suffering from PMP, or know someone who is, join this support group.

Reoccurrence of pmp within 12 months?

harleyquinn78
Posted by

Sorry to be a worry wart but I had my surgeries May and September 2017 but just recently my stomach is starting to swell again and I’m getting the same pain in the right side of my abdomen. Any clues if this is normal or should I be worried it’s back? I’m not due at the Christie until November but is it worth the wait? 

peace and love 

HQ x

Squirrelpaws
Posted by

I am not saying that your PMP has come back because it wouldn't be possible to say.  In this weather it is possible to get constipated and you are bound to have some adhesions.  I would say it depends on the level of pain and whether it settles after making sure you are drinking plenty.

Mine did come back within a year and I was really ill.  Alalthough I had surgery it couldn’t all be removed so I thought…..oh dear I copped a blighty one!  I am with Basingstoke Hospital.  However, that was a year ago and nothing has happened since.  My tumour markers were almost completely normal six months ago with no advancement of disease – two were totally fine and the C19-9 just pipped over.  They forgot to give me the blood results this May but the CT scan still showed no progression.  The specialists are somewhat non-plussed, but I think it may be what I have been doing that has held it at bay. It had looked as though it would be the multi organ transplant for me next.  The reason I am telling you is so you can put it up your sleeve, just in case.  You’ll find my info on the team inspire website.I scanned in my most recent letter from Mr Moran, it’s about the third from last response in my post.  www.inspire.com/.../


Good luck with your appointment and here's hoping all is well.

harleyquinn78
Posted by

Thank you so much for your reply, my BM has been somewhat iffy I am drinking plenty and getting my steps in for

The day. I may see how the pain gets on it comes and goes and my tummy is all swollen, but I don’t want to be running to the dr with every niggle, also my periods are all over the place so that’s probably contributing to the pains? 

Thanks again for your reply it’s a huge help xx

peace and love 

HQ x