Hi folks, anyone else got a permanent ileostomy? I have issues with the consistency of the output, it can be fine some days, other times it’s loose and can get very watery, the noises can also be quite loud. Coffee and hot chocolate were culprits but I’m not a great one for keeping a food diary and don’t exactly follow the rules, I eat late at night and find it hard to chew my food the recommended way. I also wonder about lactose intolerant or a milk allergy although I was fine before surgery. I asked my doctor and consultant about a test but this must be expensive because they wanted to go down the line of cutting dairy produce from my diet. However, I’m on a very limited budget and when I look at packaging in the supermarket it’s going to prove difficult.
Hey there High,
I'm sorry to see you've not had a reply here yet. However, I just wanted to point you to the ileostomy support group where you might get some more answers to your queries.
Hope that helps,
Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh
I have spoken with several people with ileostomies due to bowel issues and they have given some advice. However, having had 12 hour surgery for PMP, with spleen, gallbladder, umbilicus, peritoneum, omentum as well as my colon removed, I seek the knowledge from survivors of this disease as their experiences may well be different.
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