F2F support groups for PMP

FormerMember over 4 years ago

3 replies
10 subscribers
3642 views

Hi All,

Thanks for welcoming me into your online PMP community. I've been diagnosed with PMP 4 times now and recently have been deemed palliative.

I am wanting to connect with people who may be in a similar position. Does anyone know if there is a local face to face PMP support group in Berkshire?

Thanks, Claudia

pmpsurvivor over 4 years ago

Hi Claudia

I'm sorry to read that you have now been deemed palliative. As I'm sure you can appreciate, because PMP is so rare, there aren't many face to face support groups and those that there are tend to be made from connections on support groups.

Angela
Pseudomyxoma peritonei survivor
Trustee
Pseudomyxoma Survivor

FormerMember over 4 years ago in reply to pmpsurvivor

Thanks Angela, I found out that the chemo has shrunk it by 35% recently so feeling hopeful :)

Are there any groups that anyone on here have arranged? or any informal meet ups?

I'd much rather face to face interactions over online.

pmpsurvivor over 4 years ago in reply to FormerMember

I'm not aware of any, Claudia (doesn't mean there hasn't been!).

Angela
Pseudomyxoma peritonei survivor
Trustee
Pseudomyxoma Survivor

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F2F support groups for PMP