Been to Christie's today and this is my choice for appendiceal mucocele neoplasm lamn 2 ....I lost my large bowel last june due to crohn's disease but also found the appendix tumour and mucus in pelvic area.
Really not happy with the thought of scans every 6 months and the worry/anxiety but surgery is so big...any help or advice would be appreciated
There's a lot for you to think about, Julie62. For me, I would be grateful that surgery is an option as it isn't for some. I would also want to have an understanding of the outcomes from either choice.
If cytoreductive surgery and HIPEC is a choice for you now and you postpone, at what point would you decide to have it? What is the likelihood of you getting to a point where you have to have the surgery? How will you feel about that?
Sorry! That's more questions for you to consider than any answers but only you can make the decision and I'm trying to help you go through the options with the benefit of hindsight having had the surgery.
Pseudomyxoma peritonei survivor
Hi Julie I know it is a lot to deal with but the positives are that the Christie is an amazing hospital and the specialists there know how to help you with this condition. I know what you mean about having to scan so often but really in the grand scheme of things it’s not that inconvenient and they do have a good range of M&S cakes in the cafe which always makes things a bit more enjoyable for my trips there ha The surgery is big yes and pretty scary but in no time it will be over and you can then focus on your recovery. Take things one step at a time and use this time now to prep and get ready. X
Thank you so much for your thoughts...my head is spinning with thoughts and anxieties because I have a progressive lung condition as well and if I don't have it soon and I get growth in few years th my lungs may stop me having the surgery think I'm just scared as it has to be an open surgery because of my ileostomy and my Immunity is shot thanks again