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Prostate cancer

A support group for anyone affected by prostate cancer to come together, share experiences, and ask questions.

Prostate cancer

Marty Farty
Posted by

Hello all, my name is Martin, I'm 49 years old. During this lockdown I've been diagnosed with stage 4 prostate cancer which has spread to my bones and to my lungs. I've been given 5yrs to live. As you can understand my head is in pieces let along what is doing to my wife and my to girls who are aged 7 and 9.

My question is about herbal medicine, will it help me live abit longer by taking these or will it make things worse? My nurse after my first chemo session wouldn't give me an answer, please could anyone help me.

Regards. 

Ido4
Posted by

Hi Marty Farty, sorry to read about your diagnosis but welcome to the group.

You haven’t mentioned Gleason score or whether you are on any treatment. Other than chemotherapy.
Have you started hormone therapy alongside the chemo? 
You have been dealt with a hard blow to say the least and it will take time for you to get your head around things.

I would suggest eating a balanced, healthy diet and exercising regularly will both be of benefit to you.

If you want to discuss herbal medicine I would suggest you see a high quality herbal doctor but also discuss this with your oncologist as some things may interfere with your chemo or hormone therapy making them less effective. I would certainly not stop any conventions treatment as chemo plus HT has been shown to work especially if given early in aggressive cases like yours. 
I would urge caution and I certainly wouldn’t start any herbal treatment during or for a period after chemo.

i hope others answer too.

Ido4

Grundo
Posted by

Hi MF

I would go along with everything that Ido has said , also try and get the '5 years' out of your head, no one really knows and I have read  many  stories   of specialists giving a set number of years to live and the patient being alive many years after that.

I say the 3 most important things,  diet , try and cut down or cut out altogether, red meat, dairy, sugar. , Plenty of exercise and to try and remain POSITIVE, not easy all the time I understand that.

All the best

Steve

Marty Farty
Posted by

Thanks Steve, that's nice to hear. Sorry everything is such a head fuck for myself and the family. So you would go along with the herbal medicines? 

Marty Farty
Posted by

Hi, sorry. Gleason was 8,im on injections, steroid tablets, chemo every 21days. This is all very new to me and well over my head. My PSA level was 328 and is now down to 6. 

Norberry
Posted by

Hi, sounds to me from your treatment and results so far that things are going in the right way. No one has the foggiest as to how long you may have. I was told 8 months to a year, here I am nearly three years on. It will take a fair amount of time to get used to the idea of what has happened to you but you will stop thinking about it 24- 7. Everyone does. Not so easy for your wife, always harder for those worrying about us but eventually, although always hovering on the sidelines, it will become just one of those things.

Plenty of people on here who will hopefully share my opinions, you will get through it.

Ido4
Posted by

That’s a fantastic PSA response to treatment MF. 328 to 6 is amazing.

Ido4

Marty Farty
Posted by

Thanks, fingers crossed. Thanks for getting back to me and giving me your time. Much Appreciated. 

Marty 

Marty Farty
Posted by

That's good to hear and I'm pleased that I joined this forum. To be fair it's my first forum I've ever done, sad it's under such bad circumstances. Thanks for your time to get back to me. Really means alot and it's nice to hear from people who are going through the same things.

Cheers 

joeven
Posted by

Hi Marty

Sorry about your welfare, first I’am a stage 4 prostate cancer victim, diagnosed nearly four years ago, Gleason 9/10 with a PSA 893.  Like you it’s in various bones in my body. I went on a trial called Stampede, After reducing the PSA I had six doses of docetaxel, then a month or so twenty sessions of Radiotherapy, I’am now on three monthly prostap injections. 
Now if your on chemotherapy, I must stipulate that you check your temperature twice a day ( morning and night ) your immunity will be very low so be careful. Herbal medicines differ, it’s well known that turmeric, green tea, broccoli, and pomegranate all help combat the disease, I take a tablet called Pomi-t which has all these in it, just go on line look it up.

The doctors may say a few things but will never say there better than medicine. A few things help, excersize, no red meat, or very little, alcohol limited, sweet things ease the sugar. I drink pomegranate juice low in sugar and good for you.

Five years to seven is a long a long time things change, new medicines are found all the time, so like me keep looking around and ask questions when your in hospital, if one person says nothing ask another it’s your right to know.

keep safe.

Marty Farty
Posted by

That's amazing and the sort of things I need ro read being so new to my condition. So glad your keeping well and life is carrying on. 

Many thanks for your time. 

Marty

joeven
Posted by

Hi again

Its no picnic being on chemotherapy, you will have some bad times, it’s the nature of the cure, but like I say just try a little excersize, it helps keep your muscles in use, also forgot this one, I take a tablet called Alca-D you get it from the doctors, it helps strengthen the bones, it has done for me. Ask the hospital next time your there. Not sure if you can take it while your having treatment.

stay safe.

Marty Farty
Posted by

Brilliant that's great,thanks for the info.

YoungMan
Posted by

as for chemo i would advise

  1. Good digital thermometer 
  2. Marigolds
  3. Baby shower gel - my skin got itchy i used for hair as well
  4. Gentle mouthwash cosodyl
  5. Don't be shy asking for help. Family, medical or chemist
  6. Be kind to yourself you will get tired 
  7. Food for lunch which is easy and comforting 

First few days I didn't feel too bad, then it used to hit me. Second week varied then as you get back to anywhere near normal the next cycle.  Days 4 and 5 were low points but knowing it was temporary generally made it okay.  

I worked from home week 2 and 3 for most cycles although unsure how wise that was but did enable me to keep in touch. I did take week 2 off in later cycles. Probably should have taken more time off

Good luck with it

Marty Farty
Posted by

Hello, that's great. I feel ok at this point but it's so early in my treatment. I've had a sore mouth and some foods bloody hurt to eat. Touch wood nothing yet. Next chemo is on 25th of this month. 

Thanks for the mail, its been brilliant talking to other people in the same boat as me. None of my male friends have even rand or txt to talk with me about it, its like I'm the elephant in the room. Thank god for my Mrs.

Cheers Marty.