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Lorraine is a nurse specialist and sex therapist and volunteers here to answer your...
Luckily bone scans were clear so although grade 5 highly aggressive (Gleason 10) it is localised. Consultant asked my husband to consider a robotic radical prostatectomy as he is only 57. Has anyone had this and did they have the side effects? I know there are risks but then again so does everything. If so how long was the wait for the operation. Hormone treatment has lowered PSA from 30 to 3 after 2 Decapeptyl injections.
Helen24 I’m 50 and had surgery - not robotic.
There are side effects Ed but I was recovering well until I required chemo. I was told at50 surgery was better option due to longer term risk of radiotherapy. The benefit for me was that the cancer if contained is removed, also surgery after radiotherapy is a lot harder and has more risks. Mine was nerve sparing and indeed prior to hormone and chemo I had some movement - no where near full function but getting there.
I was also no affected by incontinance, well after a little bit of recovery time anyway. All depends on where the cancer is how confident the surgeon is of nerve sparing and individual anatomy.
due to position my NHS surgeon did the operation within a fortnight.
Best wishes for your next steps
Thank you. I feel a bit like being on a roller coaster not knowing what’s ahead. I feel we have to fight our best fight so we know we gave our best.
Hope you keep well on your journey and never stop fighting.
thanks for your post.
I have gleason 9.( 4+5) some areas 7 and 8.
The whole things was masked through prostatitis and finisteride
I am 69.
My bone test result is out wednesday a pet Cholina.
If I understand you correctly you still think surgery is best .
Was it done laparoscopically?
I am told my surgery should be done urgently,does that mean in weeks or a month.
I can get it done fast but am still wondering exactly where?
all the best
May you succeed .
Everyone always says prostate cancer is no problem nowadays,what nonsense!
all the very best
I guess when it’s not on your doorstep people don’t know what a horrible impact it really has on you and your family. It’s the most frightening journey I have been on. Hearing that you have cancer has such a hard impact. Working through the treatment options and risks of each is frightening.
Look after yourself and I hope you get through treatment and get to enjoy life again.
Troc you are correct my surgery was laparoscopic. There is a risk they might need to convert to open if there are complications.
Each man's anatomy and cancer is different. Fitness levels, pain thresholds also affect perspective of recovery. There are limited surgeons so some of it is luck of the draw.
At 69 your older than me so would think harder on your body. Doesn't mean should be discounted just questions for surgeon and specialist. I had one main wound below belly button two small in line either side and another just above pubic bone.
I would try and walk most days but until the catheter was removed was uncomfortable. Post surgery i built it up again. Start pelvic floor exercises before surgery then once catheter is removed. I had the catheter for nearly three weeks due to difficulty of operation. I discovered i didn't need pad one day when i forgot to put it in. Confidence was required.
Good luck with whatever you choose. It's your body and your fight. We're all different so my experience will differ from yours.
Only found out my husbands bone scan was clear but consultant mentioned robotic prostratectomy. He is 57 Gleason 10. Would like to know what options available as surgery side effects sound bad but everything is a risk.
Going to try to get more information about all possible treatments.
Look after yourself. It’s a horrible time for you. Thanks
Helen24 quite wise to investigate all options. It's a bugger of a disease!
I choose surgery on the hope it would remove the bugger. Seems so long ago now. This is really an option when contained in the gland.
Brachiatherapy was discounted due to my age and potential long term effects ie 30 years.
Radiotherapy has it's own sie effects plus surgery after radiotherapy is more tricky, salvage radiotherapy post surgery is an option.
It's a hard journey for both you and your husband stay strong and spend time enjoying what you do have on a day to dsy basis. Cancer can comsume your life.
Thank you. I feel surgery to get rid of the cancer sounds best. My husband is 57 so long term radiotherapy would have its own problems. My husband is horrified by the thought of urinary incontinence but my view is as the add on TV states ‘a little bit of wee won’t stop me’. I know he is frightened and still getting used to the fact he has cancer. I believe you need to be strong and have the attitude that I am going to beat this.
Hi Helen, my partner is 60 & had a radical robotic prostatectomy in November. He had a catheter for 10 days &:then wore lightweight pads for a couple of weeks following catheter removal. This was really a precaution rather than necessity & 8 weeks post surgery he is completely dry. We expected him to be sitting in a soggy heap in the corner & bought waterproof mattress covers etc none of which have been needed! Surgery was definitely our best option & please dont be put off by some of the horror stories / worst case scenarios because every man is different xx
Thank you so much for sharing your story. I do believe that the prostratectomy is the best option. Love the idea of a cure rather than years of managing, radiotherapy and hormone injections. Urine incontinence worries my husband most but you have to take risks to have the best life.
Hope you and your partner continue to enjoy life to the full.
My husband had robotic surgery and I totally understand your dilemma . He was 52 at time of surgery . It’s a very lonely time and no one tells you about the emotional journey . We felt getting rid of it was best , we could not surrender to it. We had the surgery by the pioneer of the robotic surgery , he was in the best of hands . Nerves were spared , he was confident all would be well . Incontinence was a challenge and seeing an erection with treatment was like a dream . But it takes a lot away and it’s a difficult one to understand . I feel lost and not sure how to restore what is lost ,
All the best with your decision , I pray it’s the right one for your husband and that you are able to support him but get support to.
Thank you Tosee
We are to see surgeon on 10 March to discuss robotic prostratectomy. I feel that it will be the best solution as at his age 57 Gleason 9 the cancer is highly aggressive and therefore needs aggressive treatment. Hot/ cold flushes are constant 24 hours per day with hormone injections and husband is always really tired.
Hope you and your husband can enjoy a long life together. It’s funny how such a diagnosis makes you realise that life is so precious and everyone should live it to the full enjoying it daily.
Good luck with it all
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