Lorraine is a nurse specialist and sex therapist and volunteers here to answer your...
Advice and info please...... my son of 36 has recently been diagnosed with prostate cancer and as a father I obviously want to do whatever is best for him. I’ve read up on DaVinci and the best place seems to be Hamburg but he’s only 36 and is really really freaked out by the highly likely side effects even though their success rate at preserving the nerves etc is pretty good . He lives in the UK but I live in Germany near Frankfurt and came across Vitus in Offenbach. I would be very very grateful if anyone that has any experience of NanoKnife,
Hi WF and welcome.
There are a couple of people on here who have had the Nanoknife, let's hope that they see the post.
Do u have any more stats ie psa , Gleeson score etc?
Thanks, I hope so too. I don’t have the data but can get it. Would it be helpful to publish it here?
It's just that the more info u can give can help people on here give the best advice.
I really didn't think that you could get PC at such a young age.
Hope that u get some other posts soon
I had Nanoknife ablation for PCa in the UK back in early June. I'm 55.
Thanks so much Don, that’s really helpful and encouraging.
My son has his next appointment with the NHS consultant in Bristol Sept 17 which I’m pretty sure it will be all about da Vinci and I would like to be able to give him as much info as possible re nanoknife options prior.
If you are willing it would save me a lot of time and effort if you could let me know who I should contact and speak to about my sons case
Again, many thanks
No problem at all. Everyone is has their own disease/presentation which will differ in severity and spread, so please get all the opinions you can before making a decision (I’m sure you’re already doing that).
I should also mention that NanoKnife is only available privately in the UK as it’s not approved by NICE yet.
Mark Emberton is based at UCH, and works privately through London Urology Associates. I had my biopsy, MRI and Op at or near the Princess Grace Hospital which is based near Harley St.
All the best to you both.
36 is very young. Can you give me some details, eg, PSA, Gleeson score, location in his prostrate, where he was diagnosed. I underwent Nanoknife with a chemo injection in Offenbach at the beginning of July for a Gleeson 8 localised carcinoma with a PSA of 10. I then spent the next 6 weeks with a catheter in place, tried twice to remove it once after 14 days, then 1 week later but couldn't void, so decided to wait another 3 weeks on advice of my doctor. I am now 3 weeks without the catheter and back and work. Before undergoing Nanoknife I underwent a Gallium 68 psma pet scan in Hamburg to determine whether the cancer had spread beyond the prostrate, thankfully it hadn't: check my posts as I have documented my experience. You will find some useful info and links that can help with your decision in my posts. When I was looking at surgery options I was advised to go with the surgeon with the most experience and the highest number of procedures. Dr Stehling main concern is quality of life: he is very honest and upfront about the disease and its prognosis; he spent over an hour with me thoroughly explaining my cancer, treatment options and side effects. When I weighed up the alternatives offered by my Irish consultant prostatectomy or radiology with a 35-40 % chance of recurrence, impact to EF and possible incontinence, it was a no brainer. After a painful 2 weeks post catheter I can report no incontinence, almost full EF (95%) and this is after IRE treatment with a chemo injection to 1/4 of my prostrate. I also suffered from BPH, chronic prostatitis ( 2 years of pain and discomfort) and epididymitis - like someone pushing a stick into your bladder while getting slapped between the legs by a plastic ball when you were a 15 yr old - any these seem to be cured as well. I am not pain free but its an 80% improvement on what it was, and I seem to be improving daily. Dr Stehling has published his findings, but also have a look at a paper published by Dr Stricker who has achieved remarkable results using Nanoknife on Gleeson 7, PSA < 10, localised to the prostrate.
If you want to talk please send me a private message and we can talk on the phone.
All the best Steve
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