Prostate cancer

A support group for anyone affected by prostate cancer to come together, share experiences, and ask questions.

Prostate cancer awaiting diagnosis confused and axious

Strawhead
Posted by

Thanks Steve 

Will let ya know what happens....i thought an MRI would be first but consultant opted for biopshy first 

Uroboros
Posted by

Hi Rabjoh, I'd just like to say that you have my sympathy.

The two worst parts of being diagnosed with a cancer, I've found, are "waiting" and "not knowing".  It seems we're always waiting for something, to see a doctor, in the waiting room, waiting for a scan, a biopsy etc, waiting for the results of the scan, the blood test etc. Not knowing what the results will be, not knowing what the drs going to say, and mainly what the future holds for us!

However, it comes and goes, time will pass and you will get somewhere and you will know something.

It is hard because you perhaps feel it's all out of your control..  

It's not always appropriate for everyone, it's a choice, but getting information about your condition, possible treatments and how to handle things can be of great benefit.

Enjoy your holiday and when you get back, if you wish let me know and I can help you find out more.

freefaller
Posted by

MRI should be first before biopsy as once they have a MRI they can see more clearly where the cancer is so that the biopsy can be targeted to the suspicious area once it is seen.  The best type of MRI is a Multi Parametric MRI but there are few machines throughout the country.  As has already been said the worst part of this whole journey is the waiting for tests and waiting for the results.  As you have had the biopsy first you should wait at least 3 weeks before the MRI for the biopsy site to heal as the MRI will show the inflammation from the biopsy which can cloud the results.  Consultants have their own way of working as you will find out on your journey.  Funnily enough I have just been talking to my brother in South Africa who has also been diagnosed with prostate cancer at Gleason score 6 (3+3) from the biopsy but still hasn't had a MRI so telling him all about this too as his consultant wants him to have an MRI next week but he only had the biopsy last Friday. 

Hope you get through this OK.

Des

Grundo
Posted by

As Des has already indicated, you're going in blind doing a biopsy first.

Perhaps someone could explain to us why they would ever do a biopsy first?

freefaller
Posted by

Do you think it is a financial thing as MRi's are expensive?  IF it isn't I just don't understand it really?  I had a biopsy first not knowing that it was best the other way around.  At that time I had not got in touch with either Prostate Cancer UK or Macmillan as naievely thought the consultant urologist was doing things the right way - I really should know better. I didn't think I needed to contact a cancer forum until I had the diagnosis of cancer  but really it would have been good to have got in contact with these forums a year earlier when I was having difficulty getting a PSA test as I would have had some of this information and known what to ask for.  I now know a template biopsy would be more accurate than a TRUS biopsy and MRI should be done first but for me it was hard just getting the PSA tests done and I should have paid to get one done once my PSA started to rise as it went from 8 to 12 in a year and this would have been picked up sooner had I been able to have the PSA test when I was already worried about it rising in the previous year from 5 to 8.  Whether things would have worked out better for me I don't know but I always wonder if they would have picked up the cancer before it was pushing on the edge of the capsule - although I would have ended up having the same treatment I still can't get it out of my mind even nearly 3 years post ht and radiotherapy that some cells might have got out.  Suppose you just never feel safe again. 

Des

Grundo
Posted by

Des

I know what u mean about near the capsule edge, mine was the same.

But for u if there some rogue cells about I think that they might of got loose by now.

Biopsy before MRI,  cost? U could be right although I think that MRI has come down in price the last couple of years, last I heard about £300

Steve

freefaller
Posted by

Steve,

Still the waiting for results of PSA tests and it never gets easier - though it has never unduly worried me as there is nothing I can do to change things I think my wife worries more than I do - as I would if it was something wrong with her. 

Yes, I often think those rogue cells would have got loose by now too but heck you never know.  My consultant has said they would consider an operation if this happened - not often done but he has complete faith that he would do it. Not sure I would want it as I get older so hope we never get there.

Cost is the only thing I can think of for a lot of things but also different consultants do things differently for their own unfathomable reasons.  Had I known what I know now I would have paid to have the MRI done first and tried to get a multi parametric MRI and had I known about template biopsies I would have got that done rather than a TRUS biopsy.  Though having said all that would probably ended up having the same treatment and the same results so it all worked out in the end a bit like a fairy story but not much eh,  LOL.

Des