Lorraine is a nurse specialist and sex therapist and volunteers here to answer your...
Thanks for the information will have a search and see what I can find
Hi! I would also be interested in seeing an answer about this. Especially the incontinence. How long after having the catheter taken out before you slow down on pudding yourself in the pads. I understand that up to a point each person us different.
I had the Op so suffering through the same thing Garry.
Hi Garry! We are definitely in the same boat with regards to age, options and worries.
I was told the Op was the most suitable option and like you told that ONE nerve would definitely not be saved.
Since the Op I have incontinence, ED, nerve pain and stress. I'd like to think that my case is on the bad side and pray you have more luck. There maybe sunshine at the end of the rainbow with feeling less of the above but much patience is needed.
If you don't mind telling me Garry, what were your Gleason scores and why did your consultant say there's a 40% chance it will come back.
The Op means you get the side affects at the start whereas with Radiotherapy it's more at the end.
I do not envy our positions but hope we handle it well.
Doesn't sound like you are having a good time right now. Having read a good number of posts on other forums by those who have had the op, it does seem you will get over these early problems. My cousin said he was as back to normal as he could be within a year. So you are probably right, a lot of patience is needed.
Don't want to jump Garry's reply, but I guess the consultant said there was a 40% chance of recurrence as this is the success rate these days. There is always a chance some cells may be missed during radiotherapy or the op, so recurrence may well be possible. The success rates for both treatments are roughly the same - approx 37% fail unfortunately. In the case of the op there is the chance to have salvage radiotherapy to try and remove those last cells.
If after the op the PSA level rises above 0.2 then further treatment is likely. If after radiotherapy the PSA rises above 2.0 then a recurrence. Hang on in there and you'll end up being a positive statistic!
Hi SD1! Thanks for your response. Much appreciated.
I am not good on patience but working on it.
My gleeson was 7 as to why he said a 40% chance of it coming back with in 5 years I think this was just his opinion.
I'm all done and dusted now he said although the surgery was extremely complicated (6.5hrs) he said it went extremely well I'm back home now feeling a bit sore but all in all feeling quite hopeful.
The way I'm looking at it now is that there is a 60% chance it will not return.
I just want this damn catheter out but unfortunately that's not going to happen until the 27th.
I now have to wait the dreaded month for all pathology results to be concluded but like I say I'm feeling hopeful for the future I'm sure I will be throwing my toys out the pram with regards to the incontinence and ed.
The strange thing is I thought we also loose our libido but this is not the case I'm still horney as ever me and the mrs laugh about it(maybe someone with more experience will pop up with some wisdom)
Just looking forward to hopefully returning to a normal life at some point.
All the best
Hi Garry! That makes the two of us wishing to return to normal life/feeling. By the end of this week would be nice :-).
Sorry I missed your query at first and didn't reply sooner. The incontinence was easier to solve than the ED. I was out of diapers and pads within about 2 1/2 months, which my nurse said is much faster than usual. The key was doing lots of kegel exercises. I was told there is no diminishing return to doing extra kegels. The recommendation was to do a set of eight 3x a day, but once I felt up to it after the surgery I was trying to do at least five sets of 10 each day. Now that I've regained urinary control I'm trying to do kegels just 3x per day, but I've been slipping lately. FYI, you can start doing kegels before the surgery.
It took me longer before I felt comfortable enough to try erections. My wife & I have tried and succeeded just a couple times, and it wouldn't have been possible without medication. It's a work in progress.
Gary i am 6 years out and everything is fine. Without trying to sound too crude i was getting a semi with the catheter in! I have my nerves spared on one side. Its a tad smaller but working fine. The dry orgasm takes some time to get used to. Best of luck. Distant memory for me. Less than 0.02 ever since long may it continue
PSA 10 &13
1 core at 5%
Hi Youngone! This is a very nice story. I was just wondering for how long after they took your catheter out were you incontinent? You also state that they spared one nerve. Apparently (but I have yet to see signs) they spared one of my nerves. How long after the catheter was out were you able to see/resume action ;-)?
I had nappies on for a few weeks. Coughing sneezing or laughter was the problem mainly. I used cialis for a 6 months but haven't used it for years. We will all be different but my other set of nerves have compensated. My appetite did not waver at any point!!!
Hi! My appetite hasn't wavered. But with ED it's like if the shit don't work, what's the use!? Time will tell I hope.
I think they need to get back in there and connect my other nerves quick :-).
I'm exactly the same I'm getting a semi probably hard enough to have sex with my catheter in which surprised me in a nice way hope it continues when the catheter comes out
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