Lorraine is a nurse specialist and sex therapist and volunteers here to answer your...
I also have locally advanced but no spread so N0/M0. I have been on Prostap for over three months and PSA has dropped from 15 to 0.4. I get gold seeds implanted next Wednesday followed by a CT scan two weeks later and RT starts mid-February.
The only side-effect I have from the Prostap is hot flushes and waking up several times every night. I have found that Evening Primrose oil (2 x 1300mg per day) helps a lot with the hot flushes. I'm still able to go rowing for an hour two or three times a week (weather permitting) and am walking the dog several miles every day.
I believe I will be staying on the hormone treatment for at least two years, but haven't had that confirmed yet.
Your husbands PC is more advanced than mine. I’m T5 N0 M0.
Hormone therapy and radiotherapy are regarded as a Gold Standard treatment, so I’m not surprised we’re on an apparently identical treatment path. I’m treated with Goserelin. Is your husband on the same.
I have no idea why one man is a suitable candidate and another isn’t. I’d be interested what your Oncologist has to say regarding the matter.
I’ve started complimentary therapy for my stress, so whilst I’m being de-stressed on the 22nd, I’ll be thinking of you both.
In the meantime stay positive, be happy.
Hi flightism, what do you mean by T5? I thought the stages were T1, T2, T3 or T4.
Hi Ido4, you’re correct in what you say. There are only four stages. I’m T4, grade 5. I knew there was a five in there somewhere. I’m just nine weeks in, and there’s been a lot happening, Paperwork, books to read, appointments, Stampede etc. I’m preching to the choir here, I know. I’ve had to absorb so much in such a short time I was bound to make some minor mistake
No worries, I just wanted to make sure I hadn’t missed anything. Are you Gleason grade 5+5,5+4,4+5? I feel for you, we are all fighting this awful disease.
My own situation isn’t great with the possibility of spread, it’s exhausting!
I have a Gleason score of 9. How it’s made up I don’t know. My Oncologist didn’t expand upon it. Personally I’m not too bothered. I just wanted to know what I have, where it is, and what I had to do to be rid of it.
Its the military mind I have. Locate your enemy, carry out reconnaissance, devise a plan, and execute the plan.
So far, my cancer has been located, it nature is known, and a plan is in place. Presently with hormone treatment it’s under siege. It’s supply lines to resources has been blockaded. It’s starving, and shrinking. In March, the assault will begin, with a barrage of radiotherapy. The enemy will succumb!
I’ve read your history. That’s quite a fight you have on your hands. Your tenacity is impressive, and I wish you all the best
Great attitude. You are right about the enemy being under siege and being starved to weaken it for its demise by hard X-rays.
When I had the salvage radiotherapy, being a physicist, I could hear the high voltage hum when the enemy was being blasted. I found myself saying “do you hear that? That’s for you, it’s your death ray!”
I know I’m crazy but it helped me visualise the destruction of those rogue cells.
All the best.
I'm about a month ahead of you but I'm told that mine hasn't escaped the prostate (T3A/N0/M0 Gleason 4+5). I start next week with implantation of gold seeds followed by a CT scan two weeks later and RT starts mid-February.
I went for my last rowing outing today and we had a great time. I suspect that sitting around for the next 8+ weeks is going to be so boring!
I have a feeling that you're not going to be sitting about too much. Daily visits for RT will consume some of your time. I had a blood test yesterday, and speaking to the nurse, she informed me I am going to be pretty tired. Her words, so rest is going to be another consumer of your time.
I can see that as an active person life could become frustrating. Personally I enjoy walking in the Lake District, and had planned on doing a lot of walking, with the intention of increasing the distance walked. Looks like that's on the back burner for a while, so I can sympathise with you.
In the mean time stay positive.
Nothing crazy about visualising the demise of your cancer. It injects some humour into a black situation. It's what gets use through.
You mention being a Physicist. Bet you've played with some fun kit in your time. Personally I was a Flight simulator engineer which gave me the opportunity to fly in simulated airspace, and use the radar and weapon systems on board. Happy days, poling around the skies wreaking death and destruction. I now have a new target.
Hi Chris, I worked on display systems for fighter aircraft for a while then smaller hi tech, high accuracy devices for commerce, military and civil aviation. It was all leading edge and pushing boundaries to the limit. My first job was part of a small specialist optics group, also involved electromechanical designs, electronics and software.
Biggest disappointment was when our chief engineer was offered the navigator seat in a Tornado as part of a fly past acknowledging the bit we played. He turned it down and didn’t offer it up to anyone else! Not quite the same as your high adrenaline, high ‘g’ manoeuvres!
I then taught Physics in a High School for 24 years taking early retirement in September.
Both very rewarding careers. It was great to have lots of stories to enhance my teaching through real life examples.
Another electronics engineer here. I worked in TV studios for nearly 30 years, followed by a few years designing video processing chips for Motorola and finally 8 years designing control systems for industrial polishing machines whilst winding down to retirement 13+ years ago.
Why are you going to be sitting about for the next 8+ weeks? you can still exercise when on RT - though fitting things in around the RT can be difficult but there is nothing whatsoever to stop you exercising. In fact it does a lot of good. I had the gold seeds too and it really did make a difference with the side effects and as I call it collateral damage. I exercised whenever and wherever I could during my RT and straight after.
I was told at my last oncology appointment that I shouldn't go rowing for the 3 1/2 weeks between getting the gold seeds and the starting RT. Also the RT will be in a hospital away from home. I do get to stay in a hotel for four weeks so I guess I can go to the gym there. I'll certainly be doing as much walking as possible and there's plenty of "big city" things to do so I won't be idle.
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