Lorraine is a nurse specialist and sex therapist and volunteers here to answer your...
Hi Glasgow,. I remember u from a previous post regards your experience.
Only thing that I would say is , why go back to the same consultant who failed with the first attempt , ( I think u mentioned £12k lighter) also going from one non mainstream treatment to another non mainstream treatment. Why not consider a good old fashioned dose of RT? U have already said that u don't want surgery
If u were to go for hifu probably consider whole prostate hi Fu rather than focal just in case there are any hidden areas not obvious on the MRI. You have already had one of there hidden areas emerge.
NanoKnife is not an ‘unknown’ treatment, as it was part of an NHS trial led by Professor Emberton some years ago, and the results were ‘inconclusive’, so was never adopted by the NHS.
You have discovered the fallibility of it with your recurrence, unfortunately.
I can see its efficacy if there is a tidy little tumour well inside the gland, blast the bugger and get on with life.
I hope you get sorted out in the end.
Hi,Have posted on here before re my nanoknife experience.Emberton would not do my grade-: Gleason 8-4+4,grade 3A- locally Advanced.Like other people have reported on here,I chose Offenbach, - last November-,,with prof Stehling,who has much greater experience, approx 700+ treatments w ith" all "grades since about 2011, I think.Yes its expensive, but since treatment have had no incontinence,little ED problems, and remedied with recommended tablets.
Am currently monitoring PSA levels three monthly under NHS.
Good luck with your choices.Les
Hello that is a great analysis
I have Gleason 8 and 9 so very aggressive
psa increased rapidly during 18 months from
3 to 12?
i have been told I could do Nano knife but it may fail!
my question is as this is very aggressive would it be life threatening to do
nano knife as I could always do prostatectomy later
i am 69 and do not want incontinence but definitely not death !
Get it removed wholesale ASAP by a high-volume surgeon (look up SANTIS), and be prepared for the possibility of subsequent radio and hormone therapy, which hopefully will kill the bastard stone dead.
Best of luck.
Dear John thank you
Did a search for Santis but am not finding anything related to cancer,
Can you tell me what exactly should put in the box please?
you are one of the few success stories I read.
I have Gleason 9.
One lives with hope and I am on verge of deciding ,can you please tell me what is your current situation after 7 minths?
Hi I am gleeson 9 PSA 11.9 had rt 7months ago PSA down to 0.6 some side effects have to get up in the night toilet pee on ht for 3 more years
I was referred to the urologist in March 2018 with a PSA of 11 and finally diagnosed as Gleason 4+5=9, T3A N0 M0 in late September 2018. By the time I started treatment in October 2018 my PSA had risen to 15.
I have been on Prostap for nearly 18 months and had 20 sessions of RT in Feb/Mar 2019. I have another 18 months to go on Prostap and my PSA is currently undetectable. So HT + RT is working for me. As I am very active (rowing twice a week, going to a weekly aerobics class and walking the dog several miles every day) I chose the HT + RT route rather than surgery in the hope of avoiding impact incontinence at which I seem to have succeeded.
Thats very helpful
I talked to a high volume urologist yesterday.
I see your points
many many thanks
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: