Greetings and all good wishes to everyone.
My LH is 9 days into his 2nd cycle of Docetaxyl. Thanks to all the wonderful support and advice we have recently received from people on here we are coping well.
His psa day before 2nd infusion was 3.4. Those who were kind enough to read my previous post will have seen it started at 4432,dropped to 7, 6.6, 6.33 on HT and now as above (3.4.)
LH has had v few side effects, mainly extreme tiredness, that lasts until early afternoon. This has been more so this cycle,beginning on day 6 (prev day 8-11) . Today his bp was a little lower for him(110/74) & pulse 111 s'times a bit irregular. temp usual range 36.5. He found it v difficult to move around as he felt so "weak" He ate bfast,was drinking & voiding normally, if a little less due to tiredness. He had no oain anywhere.
Having slept for long periods, between drinks & loo until late afternoon he has felt better this evening and helped briefly in kitchen with tea etc. Enjoying tea & tv.
As he was not as "wiped out" yday he was doing some diy in b"room. I felt it was too much, replacing a bath panel. I understand his need to do normal things but am worried that when he is feeling ok he is doing too much. Am I right? Has he just exhausted himself yday? Or should we be acting by contacting help line if he is the same tmro morning?
It does seem to be the pattern that off days last most of mornings, improving a lot later.
I am struggling to feel confident in judging what is acceptable/expected side effects of chemotherapy.I realises we are only learning his individual patter.
I did try the help line early today but had to end call before it was answered as I had an appointment. My LH was v concerthey would suggest our local A&E ,a prospect that felt v worrying, knowing wait times & infection risk.
Apologies for length of post, as always I feel better for reaching out. Its a lonely, scary place being the carer/observer as I'm sure you all know.
Thank you for reading.
Sue
