Peritoneal cancer

Affected by peritoneal cancer? Join this group to share experiences and ask questions to people who understand what you're going through.

Is anyone taking tamoxifen for PPC?

Lolapola
Posted by

I’m on my third occurrence of PPC, my CA125 is 70. I had my last chemo of carboplatin in March. This time my Oncologist is using Tamoxifen. Seems my tumours are fed by oestrogen and the Tamoxifen counteracts this. 

latchbrook
Posted by

Hi 

I've just popped in from the melanoma group as I noticed that your post had gone unanswered.

I've used the search bar in this group to look for others using Tamoxifen but drawn a blank I'm afraid. If you want to know more about this drug you could pop your question in ask a nurse where one of the specialist nurses will aim to respond within 2 working days.

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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XxxYY
Posted by

Hi. How is the Tamoxifen helping, I may be going on a clinical trial but Tamoxifen is an alternative.  

Topcat26
Posted by

Hi

I have just been prescribed tamoxifen for my peritoneal cancer. I was on Niraparib but that wasn’t working for me. I’ve only just started taking it and I’m being reviewed in Jan 2020

Deborah

 

JoJo14
Posted by

Hi deborah

My mum who is 80 has been taking it for a year now. She has been in good health with few side effects. Good luck with it!! Xx

XxxYY
Posted by

This is my situation. I was diagnosed with peritoneal cancer in the liver cavity and in the omentum.  Both have been stable from May 2019 to now taking pembrolizumab and lenvatinib but slight change last MRI which is worrying me.  This is a phase 3 clinical trial lasting two years.  I have had side effects and was informed at the beginning of the trial treatment that at some stage in the future tamoxifen may be prescribed.  

Topcat26
Posted by

Thank for your reply. I have had more blood tests and this shows that my tumour marker has gone up again so I’m now having a scan to check what’s happening. Pleased that your Mum is having good results x