Penis cancer

A place for people affected by penile cancer to support one another, ask questions, and share their experiences.

First time

Zodiac
Posted by

I've recently been diagnosed with penile cancer and I'm due to undergo surgery (glansectomy) tomorrow at St Georges Hospital in Tooting. Apparently it will be performed under local anesthesic and I'll just be in overnight. 

Obviously I'm concerned about coping back home as I live alone and what sort of pain I'll have to put up with (and for how long). Presumably I'll have a catheter (hopefully not forever). I had one some years ago for a couple of weeks and hated it - the inconvenience and fear of leakage at night flooding my bed.


The other thing that has depressed me is that I can't have reconstructive surgery as I suffer with psoriasis and apparently any skin taken from the thigh wouldn't heal. So I'm unsure about the extent of the 'loss'.


G.

Julie.c64
Posted by

My husband had glansectomy but didn't come out of hospital with catheter it was removed before he was allowed home.

Zodiac
Posted by

Thanks. I'm now back home and, yes, I didn't come home with a catheter. I spent the night in hospital and it was taken out before being discharged.

The down side is although the tumor was removed it was noted that I may have another complication with a secondary   issue/illness although confirmation of it and the extent of the cancer wont be known until the pathogy is carried out. I've an appointment on the 1st May for follow-up and hopefully learn of any results and next steps.

Z

Zodiac
Posted by

Ben, the chap I saw initially at St Georges was away on holiday so the op was carried out by top man Nick Watkins assisted by a specialist registrar. He even played Dark Side of the Moon on the theatre sound system for me during the op. 

Dispite having psoriasis he did also say he was amenable to reconstructive surgery later but I guess the all clear for cancer needs to be confirmed and any treatment necessary for the secondary issue undertaken first. No doubt I can discuss at my follow up appointment.

Currently I feel quite comfortable and relatively pain free, certainly better than pre-op as the tumor was starting to get painful. I am rather swollen and fragile down there but no worse than the cancer effect and I guess that will improve as things heal. And urinating doesn't seem to be at all painful (potentially would initially sting was mentioned to me).

Z

patrick-p
Posted by

That must be Ben Ayers. He was a registrar there in 2012 when i had 3 operations under Nick Watkin.

 

My stays in ST George's were anything but quick but nothing whatsoever at the fault of Nick and the team there. Think my first was 9 days followed by two 6 day stays but my tumour was very large and bleeding a lot as it was rubbished off as other bizarre things by my GP for 6 months previously.

I had a glans and nodes removed, followed by a sub total penectomy and then lymph glands. 

I was also told i may not be suitable for reconstruction due to me being right handed and my left arm being off limits due to surgery i had to a gun shot wound in my left wrist years ago, but Mr Christopher at UCLH was happy to use my right arm as a doner site if i consented and i had it done in January 2015.





Zodiac
Posted by

I don't think it was Ben (who I met at my initial clinic appointment) as he was away on holiday in Cornwall and the registrar was a young (rather attractive) lady. ;-)

I hope what sounds like extensive treatment for you has now proved successful. I read somewhere that penile cancer is so rare some GPs are not aware of it and not able to identify and spot it.

Z

Zodiac
Posted by

It's just over week since I got home after my glansectomy. I thought it was going well, not too much pain and able to get around, but today the wound has started leaking blood. Not profusely bleeding but drips and oozing. My concern is that it is rather mucky blood and I fear I may have an infection. Snag is it's difficult to see the problem and if there is any swelling and redness. I've phoned NHS 111 and I'm waiting for them to call back with some advise.

Z