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I was diagnosed with pancreatic cancer in August of 2000. I underwent the whipple procedure at Columbian Presbyterian Hospital in New York. I recovered from the surgery, but it has changed my life significantly. I experience delayed gastric emptying on a daily basis, and I have to eat small meals throughout the day. I have experienced dumping symptoms which are very painful and nauseating. I have to constantly monitor my diet and I cannot have anything that is too high in carbohydrates. I have now been experiencing frequent sweating, warmth and dizziness issues when I eat. Has anyone else experienced this syndrome? I am going to my doctor for tests, but I have to say that this causes me to feel unwell frequently. I have a great amount of compassion and understanding for anyone who has gone through this life changing surgery.
Diane50: Congrats on your long survival! You have 3 years on me. I had the whipple in 2013 at University Hospital in Cincinnati.
I've been living on Imodium A-D to control the diarrhea that appears without warning and with no control. I've also started wearing Depends or Always underwear just in case...It gives me more confidence when out socializing, working or shopping. Accidents happen about 2X per year if I forgot to take the Imodium A-D.
When I had the surgery, I weighed 215 lbs. 3 years before that, I weighed 130 lbs. and I was gaining weight fast because my stomach pains felt like hunger. I had a botched gall bladder surgery and 3 stones were left in a valve. That surgeon told me that I was hysterical and everything went well. Sure would love to legally punch him in the face. Anyway, I turned yellow, my stomach was on fire and went to a better hospital ER where the problem was discovered. Those stones were blocking bile from my liver and they had caused cancerous tumors.
I don't have the sweating when I eat, but I always have nausea. I've had to eat small but frequent meals to deal with it.
My weight dropped to 114 lbs. just before my hip broke on Sept. 28, 2016. It broke before the fall. It seems that I have osteoporosis - caused from nutrients not being absorbed from food which also explains the gradual weight lose since 2003 - a few pounds per year. The oncologist prescribed Creon to solve the absorption and it sure is expensive. $949 for 90 capsules of 24,000 mg and I'm to take 8 capsules a day. 1 bottle of 90 covers 11.25 days. Creon makes me gassy too.
GoodRx made it cheaper and on Jan, 1, 2017, a month supply will cost $46 per month with Medicare's SilverScript. This new prescription coverage will cost about $29 per month, so well worth it because another prescription for another problem was costing me $310 per month.
Now I had to make sure I get 1,200 mg of calcium per day with vitamin D and magnesium. A glass of milk has 30 mg. I'm taking supplements and drinking Whey protein shakes that = 495 mg of calcium and a lot of protein.
So, be sure to up your calcium, Vit. D and magnesium!
Correction: I had the whipple in 2003 at age 53.
I to am starting to have problems one year out my incision is still tender and my stomach muscles hurt I am going for a scan tomorrow I just hope all is well I think the mortality rate is now better than 20% I just don't want to go through that chemo again I have found that if I really watch what I eat and how much I eat my stomach is okay but if I eat certain foods and to much I really pay for it also my energy level is low and I really have to make myself get moving and then I feel better I hope all works out for you Shellee
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