Ovarian cancer

A support group for anyone affected by ovarian cancer to come together, share experiences, and ask questions.

Dermoid Ovarian Cyst

Patty H.
Posted by

I have had a dermoid ovarian cyst for two years plus.

My gynae specialist refused to remove it due to me being morbidly obese.

I took his advice on board eventually and have lost 4 and a half stones though I have loads more to lose.

I haven't had any symptoms until recently,initially I put it down to being 54 years old and still having periods every 28 days.

I'm now finding it difficult to poop though not completely constipated,I'm incredibly windy too.

I find it difficult to lie on my left side as I can feel something there.

I have also period like pain along the bottom of my stomach and pain in left side which can move into my thigh.

I'm just wondering if a dermoid cyst can turn cancerous as the past three /four days have been uncomfortable and worrying.

Maybe it has just grown?

I'm hoping to see my doctor after the holidays and see what she suggests.

I know the gynaecologist said he wouldn't remove the five cm dermoid cyst unless it became a medical emergency or I lost six stone.

Lost as to what to do next.

Arla
Posted by

Hi Patty,

I'm not a medic so can't answer your questions but if I was you I'd visit your gp (hopefully you can get an appointment arranged tomorrow). Well done on loosing all that weight already, I know how tough it is, I struggle with my weight and have put on two stone since my hysterectomy for my dodgy womb. 

I wasn't thin when I had my op, far, far from it, so don't let your weight hold you back from seeking treatment, if your consultant can't see how far you have come you could ask for a second opinion, I think you can do this through your Gp.

The Macmillan helpline will be open from 9am tomorrow and you can ask to speak to a nurse for some medical advice, you can call them on 0808 808 0000.

Please let me know how you get on.

Lots of love 

Xxx

iodjam
Posted by

Hi Patty 

I was diagnosed Nov 16 with squamous cell carcinoma arising from terratoma of the ovary (dermoid cyst) so you should def push the doc for more tests 

Patty H.
Posted by

Thank you for replying.

I'm going to try for an appointment with my GP tomorrow.

The pain is still there,not a full blown pain but a constant ache.

My gynaecologist discharged me,said that you could live with a dermoid cyst all your life and that he would only consider surgery if I lost six stones or it became a medical emergency.

I have lost four and a half stones.

The dermoid cyst measured five cms a couple of years ago and I didn't have symptoms,I'm hoping it might just have grown some thus the symptoms.

I think there is a six month wait to see gynaecology but will see what happens.

Thank you for your advice,I hope things improve for you.

Patty H.
Posted by

Hi Arla.Thank you for replying to my post.

I'm hoping to get an appointment for go tomorrow and see what they suggest.

iodjam
Posted by

I’m doing good got a great result from treatment but looking back before I was diagnosed I had symptoms that I just brushed off as normal . As far as I know all cysts can turn cancerous. Please let me know how u get on it would def be worth having an ultrasound that’s how they saw mine 

Arla
Posted by

Let us know how you get on Patty

Xx

Patty H.
Posted by

It was a positive experience in that the GP I saw(not my usual GP) agreed to refer me back to gynaecologist but apparently there are long waiting lists.

That was probably the only part of the appointment that went well.

He examined me and said he could feel nothing,that the discomfort I feel whilst lying on my left side is either just a roll of fat or the jut of my hip bone.

He had me out through the door in minutes.

I have been told that there is a 32 week waiting list for non urgent gynaecologist appointments.

I can't fathom how he thinks that rolls of fat can become painful.Nor does it explain my other symptoms.

Just an awful appointment.

Arla
Posted by

Oh patty, 32 weeks is ridiculous, if it was me I'd try to see another gp and see if you can get a quicker appointment, at least for a scan to track your cyst, surely the scan appointment wait is shorter? 

You can also put your name down for cancellations and it might also be worth phoning your consultants secretary to see if you can go at getting a quicker appointment from another angle.

I'm so sorry that you don't have any answers, you can also speak to a nurse on the Macmillan helpline after 9am on Monday on 0808 808 0000.

Lots of love and please let me know how you get on 

Xxx

Patty H.
Posted by

Thanks Arla.

It was a minimum of 16 weeks to see gynae but waiting times have doubled.

I'm actually too embarrassed to go back to another doctor.

The ache is still there but I think I will just have to wait.

Many thanks.

Arla
Posted by

Hi Patty,

Don't be embarrassed, I didn't set foot in my gp surgery for about 20 years, they've not seen the back of me for the last 10 months lol! They are there to put your mind at ease and diagnose you, until you are happy with what you have been told. 

If nothing else you could get some pain relief whilst you wait.

Lots of love 

Xxx