Other cancers

Are you affected by a cancer type that we don't have a group for? A group for anyone affected by a rarer cancer type to get together, ask questions, share experiences and support each other.

Essential Thrombocythaemia

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A was dignosed with et yesterday how does it effect u 

Posted by

Hi  and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear that you have been diagnosed with ET

20 years ago I was diagnosed with a rare type of T-Cell Lymphoma blood cancer but Essential Thrombocythaemia is just that touch on more on the rare side and does fall between the cracks on the cancer forums we have.

But lets see if any of the folks who posted before will pick up on your post and also look back at the posts in this thread as there are some other information sources.

You could also put Essential Thrombocythaemia into the Search Box - Top Right as you will pick up more information.

Caroline - Macmillan Heamatology Nurse may be able to help you out as well as our other experts in our ‘Ask an Expert’ section but please allow a few days to get answer.

You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be very helpful even if all you want to do is talk with friendly person that can help in lots of ways.

We also have our Online Information and Support Section where you will find some great pages covering the cancer diagnosis, treatment and information pages covering most types of cancers - just go to the bottom of the home page and have a look through the list.

Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.

When you have time it would be helpful if you could put some information about yourself and the journey that brought you to the Community into your profile as it really does help the Community members to help you and get to know you.

Click on your username and that will take you to your homepage. Look for ‘Edit my Profile’ click on it and start to tell us as much or as little about yourself as you want then click on save before closing the page.

Always around to try and help out.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

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Are you still on here?