Non-Hodgkin lymphoma

Affected by NHL? Join this group to share experiences and ask questions to people who understand what you're going through.

Non hodgkins

maggaz
Posted by

Hello all hope all are OK, I havnt been on awhile hubby got alclears in March he had to have 2 methatraxit can't spell in he was ammitted for both as he couldn't have it in the spin really knocked him for six, anyway 2wks after the treatments and the all clear he has had the runs food just goin threw him he's living on buscapen and modium, we seen his specialist on Wednesday and they are doing a camera of his bowel to see what's going, do i need to be scared it's bk, he's lost 5kg he's a big bloke, please any reassurance is welcomed I'm not coping right now I'm so scared for him x

Thehighlander
Posted by

Hi , so first good news about the ‘all clear’ but frustrating about the runs and the investigations.

Reassurances? Over my treatment, post my treatment but before I went to Stem Cell Transplant I lost 27kgs and had a few one week continues runs but all came ok...... but I was checked out every time,

((hugs)?

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

maggaz
Posted by

Thank you it's just having the runs this long everytime he eats or waked up I wouldn't say its a huge weight loss but significantly just from having the runs think we both thinking the worst that it back, he had a low grade and a high grade the high being treatable the low being managed he has to hav the R of the R-Chop for 2 yrs over 2mths at a time he's had one of them sofar next wk be his 2nd x

Thehighlander
Posted by

Maggaz, it’s good that he is getting checked out.

It takes time to regain trust in our bodies..... The runs were due to a few stomach issues brought on by my treatment and food indeed basically went straight through me and no meds could stop it.

((hugs)) again xx

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

maggaz
Posted by

Thank you so much for your help has eased me a little x

Thehighlander
Posted by

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

johnr
Posted by

Hi, good to see Mike has reassured you, two questions has he suffered with peripheral neuropathy since his rchop and has he had bowel issues for a while since treatment where he experiences constipation then being loose? 

Its a long shot but when he sees his consultant it may be worth discussing neuropathy to the autonomic system, the Lymphoma Action site magazine, which you can download has a good article explaining the different types of neuropathy we can suffer with, both short and long term post treatment.

John  

we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
maggaz
Posted by

He's just had the runs with stomach cramps noo issues before just thee runs started 2 wks after his last metheatixic

johnr
Posted by

Then my thoughts are probably misplaced and its likely to be something totally different, hope he gets sorted as its no fun I suffered for nearly 2 weeks once and it does wear you down.

John 

we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
maggaz
Posted by

He's been like it for 3mths x